Help me: Hi. I contracted pnuemonococal... - Meningitis Now

Meningitis Now

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Weekazaa profile image
8 Replies

Hi. I contracted pnuemonococal meningitis nov 11. It brought on severe ataxia and cerebelitis. I was in hospital for 6 months. I was getting better slowly however came home and was basically kept in a bed for a yr only getting up to wash or go to the bathroom. Physio stopped as I kept fainting and vomiting. I wasn't getting the proper food. None of my clothes fit me now. I don't go out ever and am alone. Social work aren't interested. I have no balance and can barely walk with a frame. I fall a lot. I've not been able to write or anything for 2 yrs. again no help from anyone. I now have nystagmus in the eye which causes me to vomit and feel dizzy constantly. I can't look at the tv or anything moving. I have no family to help me. They made me deteriorate like this even though they were told I'd need lots of help at home with walking as I fall. I was alone a lot, seeing people for minutes at a time. I have dogs I seen once a month if I was lucky. I don't know what to do now. I need help

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Weekazaa profile image
Weekazaa
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8 Replies
ignoreit profile image
ignoreit

Where are you Weekazaa? In the U.S.? If so, which city and state?

Weekazaa profile image
Weekazaa in reply toignoreit

No the uk. Scotland to be precise

ignoreit profile image
ignoreit in reply toWeekazaa

Well then, gee Weekazaa, I'm American so I'm afraid I am totally unaware of HOW health care works in the UK.

I'm so sorry but good luck to you on contacting a health care knowledgeable person there in the UK.

Weekazaa profile image
Weekazaa in reply toignoreit

Thank you. It's a national health service here. Once your out of hospital you're forgotten about. You either get better at home or don't.

SilverCharm profile image
SilverCharm

So sorry to hear about the awful effects and the terrible time you are having in recovery.

Hopefully someone there at the meningitis trust can help you with some of your issues. Thoughts and prayers are with you.

Weekazaa profile image
Weekazaa in reply toSilverCharm

The trust have been good emotionally but it's physical help I need more than anything. I'm trying to get a referral back to hospital. I've never had a review

SilverCharm profile image
SilverCharm in reply toWeekazaa

It sounds like you could really use an assistance dog. Something sturdy like a Labrador retriever trained in helping people with physical disabilities.

Weekazaa profile image
Weekazaa in reply toSilverCharm

Tbh that wouldn't help me. A dog can't lift or hold things and I'm trying to go back to hospital

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