After bm seen to have no energy and muscle ... - Meningitis Now
After bm seen to have no energy and muscle weakness, it's been 8 weeks
8 weeks is not very long. Give yourself 6 months or so, as others have said it will take time. I had after effects of aching for several months but it eased eventually. It doesn't help to say everyone is different but they are. Just try to stay positive.
hello
i hope u are feeling better
you dont say how bad a case your BM was did u have septicemia with it
when i had it i had a month in a coma and then 2 more months in hospital
that all started on the 23 November 2003 so coming up to 10 years
i still get very tired and have no energy at all and my muscles are very week
i have had physio all this time and we keep trying
so dont rush in my case its been a long slow time
take it one day at a time and just think u are lucky to still be with us
my doctor always says i am lucky i died twice so why rush what u have
sorry to be a downer on this
just take it easy and don't rush
all the best for the future
Thank you for your responses
Hope you both are well
Paul wow you have been through a lot
I has septicaemia too but I was very lucky. Was in intensive care for 5 days was diagnosed very quickly. Was in hospital for a week and then the iv team came hm to give me meds.
I nearly died too really thought this was it.
Just really worried as I work as a kitchen supervisor and my job very physical and thinking will I be able to do my job again
I start physio next week
I agree it all takes time .I am 8 months on from onset of bm /encephalitis & am just beginning to feel stronger again. Still suffering from arm & shoulder aches at night as though I have been lifting heavy weights all day ( which I haven't!!) I hope you will continue to improve & return to your job in time . In the meantime just be kind to yourself
As the others have told you feel lucky to be alive. I lost my hearing which also affects balancing your ability to walk. Its been 2 years for me. I go thru times of having aches & pains in my muscles. Luckily 6 months ago I had an ear implant on my left side which has restored hearing partially. One thing I want to pass along is that there is a vaccine for meningitis. There are different ones for your age group.All school kids are suppose to have it but the adult ones are not pushed. I found out after research so pass it along. I am in the states so it might be different somewhere else. Its not a easy road to travel
As others have said, be kind to yourself and don't rush back to work. I did and it messed with getting disability as early as possible.
I'm not sure how old you are but the best advice I can give is to go with the flow and listen to your body. Don't push yourself to do too much too soon and think back to how you were one or two weeks previously. It was always an improvement for me, however slight. (I'm retired[and recovered] and had it six years ago)
Hi!
I'm coming up on 7 months recovery from bm, I too was close to dying, but a savvy ER staff tested me right away and air lifted me to a bigger more capable hospital where I got very good care. I was in ICU for 10 days then a transition room for 2 days then they let me go ( I live in the U.S. And have no insurance). I spent 8 days at my dads before I was well enough to make the 3 hour car ride home (even then that ride was excruciating). My family Dr of 13 years was useless to me so I haven't had much after care other than a really good old Dr at our local clinic that spent some time researching bm after effects. I was able to return to my business on a very part time basis ( we own a small burger place and I used to do all the cooking, I've since given up a lot of that). I tire pretty easy but am finding it's getting easier every day. I still have really bad shoulder, arm, wrist, and upper back pain almost all the time but it seems to be slowly letting up (I hope). My memory is laughable, as is my hearing. I'm close to deaf on the right and tinnitus so bad that it interferes with what I DO hear. But... I must say life is good. It truly is what you make of it. Take is as easy and slowly as you can, accept help when offered, and try to be positive. My worst days have been when I've allowed myself to dwell upon how I used to be. So look forward and do your best. Take your time and get well. I've been told the brain can take 2 years to heal itself and sometimes it's so gradual you won't notice but your friends will.
Blessings to your recovery,
Connie
Thanks for all your advice
The disease saps energy as does being in the hospital. I had low energy for a long time, still get tired easily. I also have migraines just about all the time. It does get better, especially in the first six months. Then, every six months out from there the chances of improving decrease according to the neurologist I've been using since 2011. I'm not going to get better than I have, so now it's a dealing with game rather than a surviving one. I don't want to give false hope or false discouragement either. Try to live within your energy levels now and see how that develops over time. Like the ancient Greeks said, Change is the only true constant.
Thanks
I agree
Feel my energy is improving
Like you I have migrines or I get confused now headaches everyday
GP has prescribed me a preventative which I am hoping will help
