SPD especially with smells: My daughter's Sensory... - Mencap

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SPD especially with smells

PurpleTiger6 profile image
5 Replies

My daughter's Sensory Processing Disorder is causing her and us the biggest difficulties. Does anyone else have experience of help that is available. She is finding it harder to cope with leaving the house especially due to smells.

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PurpleTiger6 profile image
PurpleTiger6
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5 Replies
LDAutie profile image
LDAutie

hi, have a look into sensory integration therapy, see if your daughter can get refered first otherwise itll be looking for it privately.

i have mild learning disability,classic autism and extremely acute sensory issues alongside other disabilities-ive had quite intensive sensory integration therapy while on a section 3 in a learning disability hospital and it did change my life for the better,i was able to leave the house without major meltdowns,sensory overloads and restraining,be sat in a room with the tv volume on,listen to music,wear some clothing at home as some of my support staff didnt understand the pain i feel when wearing clothing etc- but its a lot easier for kids/teens/young people in the community to get refered for sensory integration therapy or so ive been led to understand,as an adult you will only get it if you look privately,or like me-you happened to get forced long term into an LD A&T hospital.

best of luck with this to your daughter as i know how difficult it is living with extremely acute senses-no matter what diagnosis.

PurpleTiger6 profile image
PurpleTiger6 in reply to LDAutie

Thank you, my parents offered to pay privately earlier. She's 18 in 2 weeks so guess now an adult.

xenababe999 profile image
xenababe999

HelloHope your ok. Please read my last post. I can also add that if anyone was sick or said they were sick around me I would have to stay inside for a week. I thought then the germs would not get me. Smells were a big part. Sick, animal, bad yukky smells, anything. When I got older and met my partner and eventually got pregnant it was awful. Morning sickness was a nightmare but I had no choice. When she was tiny and was sick I would freak out but eventually I had to deal with it. Next came my son and evening sickness was the worst, everything I had eaten all day came up.......therefore I would not eat and lost a lot of weight. Docs said eat or lose your son.......

nursenatalie profile image
nursenatalie

have you tried occupational therapy, they support with sensory issues ?

katkit15 profile image
katkit15

I was also going to suggest occupational therapy. My daughter saw a very supportive OT but unfortunately she only had a few sessions as there is so little funding.