Lynch hell: I was diagnosed with HNPCC... - Lynch Syndrome UK

Lynch Syndrome UK

Lynch hell

Ashtonlan3 profile image
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I was diagnosed with HNPCC (lynch syndrome) in 2003 and have been asking for a full historectomy since then, after repeated referrals from my GP I was eventually seen on 6th June 2023 only to be told I should have had it 20years ago and now the waiting list is 3 years minimum so will be nearly 60 I'm in hospital repeatedly with other Conditions and any time I ask I'm told oh its nothing to worry about and spoke to like a child how the hell am I supposed to trust them now

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Ashtonlan3
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Hrant profile image
Hrant

if you cannot pay for it privately then wait the 3 years but keep testing for related cancers

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