Is this the end?: Hello. New to the... - Living Well with HIV

Living Well with HIV

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Is this the end?

9 Replies

Hello. New to the site. Just want to get to know people going through the same things I am. Does anyone else feel so alone and wanting to be social but can't help being antisocial?

9 Replies
Rob04 profile image
Rob04

Yes I know that feeling been feeling this way for sometime even though my doctor says I'm fine but just knowing is the problem for me

in reply to Rob04

Exactly. Every guy that tried to get close I sabatoge any attempts by becoming disinterested, when I really am because I know I have to tell them, even though I'm undetected with no other health problems, I still feel I'm not ready to reveal my status. Even when I strategically bring up what if I am positive, and they say they don't care, I won't get close. I went from being very socialable to a hermit. I cut everyone off so they don't ask me why I'm so withdrawn, what's on mind, why I'm so quiet, and etc. Its like I want to die, but I want to live. I hate this. I never even got a cold, but I get this, this of all things. Smh.

in reply to Rob04

Doctors are jerks when it comes to this. They see me as a cash cow, till I'm not longer beneficial to them, money wise. Once i got a rash, and asked what could it be, and without examining me, my doctor said, its a staph infection from sleeping in filthy dirty sheets and not bathing for a long time, mind you I look and smell better than him. I told him I take 2 showers or more a day hoping I can wash this filth from system and I change my sheets every three days, he said he doesn't bathe everyday and he changes his sheets maybe every week. Unreal. So maybe its not a staph infection. Jerk. I showed him bruises I keep waking up with that look like hand marks and human bites, which i told him has been happening for many many years and he said its bed bug bites, lol, mind you, ive never even seen a bed bug anywhere I've slept because no one I know including myself ever had bed bugs. I am boarder line OCD, so cleaning is a must in my house. I don't have bed bugs. Smh. Lol. And again he never physically examined me, he just came up with those causes. Turns out, I'm allergic to Shea butter, and I might be harming myself in my sleep, because I do suffer from night terrors, which Ive had for over 20yrs. But due to having insomnia, I take ambien, which might be making things worse. I'm switching doctors though. Now I do alot of holistic things to deal, to stay sane. I read a lot and listen to music to help.

Rob04 profile image
Rob04 in reply to

I totally feel you on doctors. I'm currently looking for a new now my doctor makes me feel as though I'm really all fine and I tell her constantly I'm living with HIV no I'm not fine but I manage to get through life

Givemefreedom profile image
Givemefreedom

I know exactly what you mean.

There is no one to talk to .

I hope you're ok

Rob04 profile image
Rob04 in reply to Givemefreedom

I am I just wish I could meet someone who will accept me for me if I told them that I'm hiv positive and not give me the cold shoulder I want to be with someone but to afraid what some will think of me that's why I just stay to myself it gets lonely but that's what social media is for right ☺

Vv81 profile image
Vv81 in reply to Rob04

I know how you feel not easy I think positive and we will have people that we could trust and feel comfortable around

in reply to Rob04

I can't do mainstream social media. People mindsets are denser than jello. I can't. I responded to some post with just a emoji and I get cursed out. Too much negativity on those avenues of communication. Plus there are a lot of loons on there. Very vain people. I think i have maybe ten selfies. I'm like to take pics of other things not myself. Not because I feel unattractive, I'm just not vain. I think I'm going to be the old lady with a lot of cats, telling kids stay off my grass, leering at people through binoculars, love jazz music, and dances in the moonlight neked, ( I know its spelled naked, its just my way). Lol. If we support each other, we'll be OK. This is a great outlet for me. 👍👍👍

Vv81 profile image
Vv81 in reply to

I agree

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