How long did it take you to get a Lipoedema d... - Lipoedema UK

Lipoedema UK

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How long did it take you to get a Lipoedema diagnosis?

SuzanneE profile imageSuzanneEVolunteerLipoedema UK59 Voters
15
0-5 years
10
Over 40 years
9
31-40 years
8
10-15 years
7
21-30 years
6
16-20 years
4
6-10 years
2 Replies
Mrsrbh profile image
Mrsrbh

I started trying to get diagnosed when I was 14. It took me until I was 19 and I was extremely tenacious and had to see Professor Mortimer in London privately to get diagnosed.

aepyornis profile image
aepyornis

15 years.

Misdiagnosis included: being overweight (at 17, BMI around 17), thrombosis, cardiac insufficiency, lymphoedema, etc.