Last year, we decided to sign up to the Information Standard. The Information Standard is a certification scheme for all organisations producing health and social care information to patients and families.
You can find more about the Information Standard on their website: theinformationstandard.org
We believe by becoming certified, members of the public will feel more confident about our information resources, as a trusted and reliable source of information on ALD and AMN.
We have our full assessment on the 4th and 5th February. To make our case even stronger during the assessment, the assessor would like to have the opportunity to speak to some of our members who have been involved in the production of our information resources. This could be through attending a focus group, or even sending feedback on our information resources.
If you would be interested in helping our case, please send us your contact number and time of day we can contact you by email to info@aldlife.org.
ALD Life team
I have 3 sons who have just been diagnosed with ALD