Group Announcement: Group Closing - Leukodystrophy Su...

Leukodystrophy Support

195 posts

Group Announcement: Group Closing

0 Replies

We are sad to announce that on Saturday 31st December 2022 we will be closing the Leukodystrophy Support group on Health Unlocked.

However, we have some exciting news, we have created our own Facebook Group called ‘Alex TLC Community’. We hope that having our own dedicated group on Facebook will ensure more of our community are able to be involved in conversations and discussions. The group is private, we will moderate who joins and have set certain rules, so members know what to expect in the group.

Please get in touch with suzanne@alextlc.org for more information on how to join our Facebook Group.

Not what you're looking for?

You may also like...

Do you want to get in touch with someone with a similar experience of ALD or AMN?

If you do, we have a contacts list full of people willing to provide support about all aspects of...

I have 3 sons who have just been diagnosed with ALD

The youngest 2 will be having bone marrow transplants. Was wondering what peoples experiences were....
littlelegs2 profile image

An ALD carrier in Vietnam

Hi, I am new here. I am a ALD carrier from Hanoi Viet Nam. My brother died by ALD in 2002 at 11 and...

Newbies needing some advice 😊

Hi everyone. I’m new to this site (not new to ald, unfortunately my son Reuben was diagnosed about...

New in fight with ALD

Hello everyone, My name is Ramona from Romania,my son was diagnosed recently with X-ALD ,he has 8...
MonaStoica profile image

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.