Upcoming Beneficiary Events - Leukodystrophy Su...

Leukodystrophy Support

195 posts•

Upcoming Beneficiary Events

•

3 years ago•0 Replies

There are two upcoming beneficiary events being held on zoom.

On May 18th 11:30-12:30 for carers and family members of recently diagnosed children.

On June 21st 13:00-14:00 for affected individuals, carers and family members of recently diagnosed adults.

Please contact suzanne@alextlc.org for further information, questions or the zoom link to attend

The ability to reply to this post has been turned off.

Not what you're looking for?

You may also like...

Difference between AMN and ALD

My 32 year old son just passed on June 27th . He was diagnosed at 25 with ALD. Everyone told me it...

•10 years ago

I hate to ask but i need to know…how long after the disease sets in do male children have before they lose the battle with this disease?

My son was diagnosed in January and is already showing signs of organ failure and it is only June....

•11 years ago

drugs for 8 years old boy suffering ALD

Hello! My son a year ago was diagnosed with ALD. The disease progressed rapidly, now he already is...

•8 years ago

What's your view on Lorenzo's Oil?

Do you have an opinion on Lorenzo's Oil? Do you think it works? Or, do you think it is a complete...

•11 years ago

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.