Rare Disease Day 2022...how to get in... - Leukodystrophy Su...

Leukodystrophy Support

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Rare Disease Day 2022...how to get involved!

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It is Rare Disease Day on Monday 28th February.

This year’s theme is #LightUpForRare, a global chain of lights at 7pm around the World on Rare Disease Day. Everyone can participate in the Global Chain of Lights. To find out how: rarediseaseday.org/download...

You can also light up our Rare Disease Day Virtual stain-glass window by helping to decorate a panel of it with a chosen colour: visufund.com/alex-tlc-light...

You can also share your story and read many other people's stories on the Rare Disease UK’s Rare Repository: raredisease.org.uk/rdd2022/...

Also please help raise awareness of Rare Diseases by sharing our posts and your own stories on Rare Disease Day using the hashtag #RareDiseaseDay2022

How will you be getting involved in Rare Disease Day? Please comment below and let's share some ideas 💫

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