Be a part of the first official study exploring the true impact of Childhood Cerebral ALD

Alex TLC are working with Sheffield Hallam University to publish a paper demonstrating the psychosocial impact of CCALD on parents and carers.

The study is a first of it’s kind and will help to provide evidence towards Newborn screening for ALD. It is a valuable study with the results providing a good opportunity to improve the circumstances for other families. The results will directly feed into initiatives to improve diagnosis and access to treatments for ALD patients.

You can find out more information by visiting our website: alextlc.org/childhood-cereb...

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