Researchers from Sheffield Hallam University are conducting research in collaboration with Alex TLC to understand parents’ experiences of having a child diagnosed with Childhood Cerebral Adrenoleukodystrophy (CCALD).
The study involves completing an interview either by telephone or via zoom, which will last approximately an hour.
To find out more: alextlc.org/childhood-cereb...
For any questions: suzanne@alextlc.org