Community Weekend Content & Feedback - Leukodystrophy Su...

Leukodystrophy Support

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Community Weekend Content & Feedback

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We hope you all enjoyed our Digital Community Weekend in November!

For those who attended, you will receive an email through explaining how to access the recorded content from the weekend. If you haven't already, can you please take a few minutes to complete our survey. Your feedback is important to us, to let us know what we did well but also what areas could have been improved. This information is valuable to us when planning future events, including community weekends. Please click on the link to access the survey:

For those who didn't attend the weekend, please contact for more information about how to access the weekend content. It would be great to get some feedback from you too about why you didn't attend the weekend. Either reply on this post, or please email It would be valuable to know why you didn’t attend and if there is anything we could have done differently that would have changed your decision.

Thanks everyone 😊