You can now view the agenda for our digital community weekend:
alextlc.org/digital-communi...
Do you have any questions about the presentations and activities? Are there any questions you'd like to ask the doctors or presenters? It would be great to hear you're thoughts, please comment below....
Please remember we also have a general catch up on Wednesday 3rd November at 18:00 where we will be discussing the weekend as a group. Contact suzanne@alextlc.org if you are interested in attending
I hate to ask but i need to know…how long after the disease sets in do male children have before they lose the battle with this disease?