The Alex TLC Digital Community Weekend brings together leukodystrophy sufferers and their families, alongside doctors, researchers and scientists from around the world to discuss how leukodystrophies affect them and to build long lasting and supportive relationships.
We are back again for our 2nd Digital Community Weekend so we are asking you all to SAVE THE DATE for the 20th - 21st November
What to Expect?
1. Presentations from medical professionals
2. Meet & chat with families in the same situation
3. Workshops & activities
4. Get your questions answers by professionals
So that we can provide the best possible weekend for all our families please spare two minutes to complete our poll outlining what you would like to see at your 2021 Digital Community Weekend.
If you want to get an idea of what to expect from a digital community weekend, then watch our video which outlines what happened at our Digital Community Weekend in 2020: