It is great you have found out about the Leukodystrophy Support group on Health Unlocked. Please remember that Alex The Leukodydstrophy Charity (Alex TLC) has a website with information about all types of Leukodystrophy: Conditions - Alex - The Leukodystrophy Charity (alextlc.org) They also provide support and advice to individuals affected by a Leukodystrophy and their families. You can get in contact with them by emailing suzanne@alextlc.org
What sources of information and support have people used since being they or a family member has been diagnosed with a leukodystrophy?