Our newborn screening campaign, to get ALD added to the newborn screening programme, featured on the South East BBC news on Monday 10th May. You can watch the story here: youtu.be/253Y7RCaPd8
As a result we have now exceeded our target of 10,000 signatures!
petition.parliament.uk/peti...
Thanks to everyone who signed the petition!
Such wonderful news! The BBC coverage was awesome and so heart wrenching. I am 58 and wish that ALD was included then in California but it only was added in 2016 . Today at 58 years of age; Addison's at 17, AMN at 37 and ACALD at 58. Congratulations! I needed to hear some good news today! Cheers and thinking of you all.
Thank you! We are so pleased how the story was covered and that we've reached our target of 10,000 signatures. But please keep sharing the petition, the more signatures the better in demonstrating the need for ALD to be added to the newborn screening programme. Have a lovely weekend ☺️
