Any advice?: Hi everybody. I hope you... - Leukodystrophy Su...

Leukodystrophy Support

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Any advice?

Olivia_Bostock profile image
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Hi everybody. I hope you all had a good Christmas despite everything going on at the moment. Without a doubt, this year has been incredibly challenging. To help each other, are there any things that helped you and your family get through this year? Anything from practical advice such as new techniques, medication or technologies that you have found have helped, to wellbeing advice such as new methods you have tried that reduce stress/anxiety. Please comment below!

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Olivia_Bostock
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Kranal profile image
Kranal

The Alex TLC Community Weekend delivered online was a great success. Thank you Sara, Karen, and all who delivered their presentations on the latest news on ALD and AMN. It's a big thank to you all for organising it. Here's to 2021 . Let's hope newborn screening gets the attention it deserves.

Olivia_Bostock profile image
Olivia_Bostock in reply to Kranal

Hi Kranal, I'm glad to hear you found the community weekend conference beneficial :)

Kranal profile image
Kranal

Kranal again - hi Olivia and everyone. In addition to our UK conference (Alex TLC) I also found the USA ALD Connect excellent too. It's interesting to hear about all the pharmaceutical companies' developments. Let's hope for more news in 2021.

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