Hi everybody. I hope you all had a good Christmas despite everything going on at the moment. Without a doubt, this year has been incredibly challenging. To help each other, are there any things that helped you and your family get through this year? Anything from practical advice such as new techniques, medication or technologies that you have found have helped, to wellbeing advice such as new methods you have tried that reduce stress/anxiety. Please comment below!
Any advice?: Hi everybody. I hope you... - Leukodystrophy Su...
Leukodystrophy Support
195 posts•
Any advice?

Written by

Olivia_Bostock
To view profiles and participate in discussions please or .
3 Replies
•
The Alex TLC Community Weekend delivered online was a great success. Thank you Sara, Karen, and all who delivered their presentations on the latest news on ALD and AMN. It's a big thank to you all for organising it. Here's to 2021 . Let's hope newborn screening gets the attention it deserves.
Kranal again - hi Olivia and everyone. In addition to our UK conference (Alex TLC) I also found the USA ALD Connect excellent too. It's interesting to hear about all the pharmaceutical companies' developments. Let's hope for more news in 2021.
Not what you're looking for?
You may also like...
Newbies needing some advice 😊
Hi everyone. I’m new to this site (not new to ald, unfortunately my son Reuben was diagnosed about...
In need of help, anyone out there?
My 8 year old nephew was recently diagnosed with ALD and given less then 2 years of his life. Every...
drugs for 8 years old boy suffering ALD
Hello!
My son a year ago was diagnosed with ALD. The disease progressed rapidly, now he already is...
New to health unlocked
Hi, my name is Alisha. I’m a 33 year old carrier of ALD. My family found out about this disease...
Hi, I am looking for some advice on follow-up of asymptomatic men with ALD. My brother is 32.
I have read the latest review article relating to regular MRI scans and adrenal function tests. Has...