ALD Conference Call for Families, Car... - Leukodystrophy Su...

Leukodystrophy Support

195 posts•

ALD Conference Call for Families, Caregivers and Patients

6 years ago•0 Replies

I received this announcement from ALD Connect:

We are excited to announce that the first set of ALD Connect Community Calls will be starting next week!

Tuesday, March 19th 6pm ET/5pm CT:

Cerebral ALD Patients, Families, and Caregivers (Pre- and Post-transplant)

Facilitated by Jesse Torrey

Register here: events.r20.constantcontact....

Written by

SongStream

To view profiles and participate in discussions please or .

The ability to reply to this post has been turned off.

Not what you're looking for?

You may also like...

Difference between AMN and ALD

My 32 year old son just passed on June 27th . He was diagnosed at 25 with ALD. Everyone told me it...

•10 years ago

drugs for 8 years old boy suffering ALD

Hello! My son a year ago was diagnosed with ALD. The disease progressed rapidly, now he already is...

•8 years ago

Genetic testing for under 16s

Is it hard to get genetic testing for your son or daughter? It is suggested it is difficult for...

•10 years ago

Do you want to get in touch with someone with a similar experience of ALD or AMN?

If you do, we have a contacts list full of people willing to provide support about all aspects of...

•12 years ago

Hi, I am looking for some advice on follow-up of asymptomatic men with ALD. My brother is 32.

I have read the latest review article relating to regular MRI scans and adrenal function tests. Has...

•12 years ago

Related Posts

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.