Introduction : Hello everyone. My name... - Leukodystrophy Su...

Leukodystrophy Support

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Introduction

Pine_Knot profile image
4 Replies

Hello everyone. My name is Gary. I'm new to this site. 

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Pine_Knot profile image
Pine_Knot
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KazzyALD profile image
KazzyALD

Hi Gary, welcome. My name is Karen. I am an ALD mum, my son is 28, and thankfully shows no signs of the disorder. He also, has Addison's Disease. 

I'm showing mild signs of nerve damage in my legs. 

Pine_Knot profile image
Pine_Knot in reply toKazzyALD

I also have addisons. I have good days and bad days(5 out of 7). I'm not able to walk on my bad days. Can your son walk?

KazzyALD profile image
KazzyALD in reply toPine_Knot

Yes, my son isn't showing any symptoms, thankfully. His Addison's has been kept under control, as well. 

wilburlois15 profile image
wilburlois15

Hi Gary. Welcome to the group. I am a 39 year old male with AMN. I have some problems walking but don't have adrenal problems.

Angus

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