My nephew is waiting on a brain scan to see how/if his brain is being affected. He lost one cousin at 39. The other cousin seems to be more physically disabled. I'm trying to get as much knowledge as I can so I can help In any way. He's 38.
Hi.: My nephew is waiting on a brain... - Leukodystrophy Su...
Leukodystrophy Support
195 posts•
Hi.
2 Replies
•
Thanks for the contact. My lindafranco78@gmail.com email
Hi Declan, If you have not done so already, have a look at our website aldlife.org
We have lots of advice in our patient information section.
Not what you're looking for?
You may also like...
Difference between AMN and ALD
My 32 year old son just passed on June 27th . He was diagnosed at 25 with ALD. Everyone told me it...
An ALD carrier in Vietnam
Hi, I am new here. I am a ALD carrier from Hanoi Viet Nam. My brother died by ALD in 2002 at 11 and...
Hi, I am looking for some advice on follow-up of asymptomatic men with ALD. My brother is 32.
I have read the latest review article relating to regular MRI scans and adrenal function tests. Has...
My 6 years old son with ALD
My son transplant was not successful and doctors do not rexommend a second transplant. My son is...
In need of help, anyone out there?
My 8 year old nephew was recently diagnosed with ALD and given less then 2 years of his life. Every...