We have a person in UAE who is desperately looking for advice and support for a young boy with ALD. He would like to get in touch with someone in the region, and information about any medical specialist or hospitals in the area. If you have any information you feel would be valuable, please send an email to info@aldlife.org.
A person in UAE needs your help! - Leukodystrophy Su...
Leukodystrophy Support
195 posts•
A person in UAE needs your help!
The ability to reply to this post has been turned off.
Not what you're looking for?
You may also like...
Is the protocol for managing adrenal insufficiency different in your area?
What are you advised? Are you given antibiotics? Have you been told to register with the ambulance...
Do you want to get in touch with someone with a similar experience of ALD or AMN?
If you do, we have a contacts list full of people willing to provide support about all aspects of...
In need of help, anyone out there?
My 8 year old nephew was recently diagnosed with ALD and given less then 2 years of his life. Every...
I have 3 sons who have just been diagnosed with ALD
The youngest 2 will be having bone marrow transplants. Was wondering what peoples experiences were....
What's your view on Lorenzo's Oil?
Do you have an opinion on Lorenzo's Oil? Do you think it works? Or, do you think it is a complete...