CMMLLand Systemic Mastocytosis

I have recently been diagnosed with CMML1 and if that wasn't enough, Systemic Mastocytosis. Has anyone out there been diagnosed with same as I would like to talk to you

[2003UK]

Hi, I am sorry I cannot help you medically but we are all here to support you and the Leukaemia Care Charity helpline is open Monday - Friday 9am until 5pm and they have a special evening service on a Thursday and Friday 7pm - 10pm. The number is freephone 08088 010 444. What I have noticed is that we seem to share the similar fears, thoughts, feelings, questions, practicalities and often some symptoms, like fatigue. I have found writing down everything I want to ask my medical team before an appointment helps and my anxiety kicks in and my mind goes blank. Take care.

[Jess-UKMasto]

We at The UK Mastocytosis Support Group are just building a community here on Health Unlocked. Please do come and post in the group, if you like, to see if you find others with your combo of diagnoses. CMML is one of the most common "associated haematologic disorders" to accompany SM, though still rare over all.