Hi
Are there any people on here with CML?
CML: Hi Are there any people on here with... - Leukaemia Support
CML
Written by
Vanjmali
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6 Replies
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Hi there. I was diagnosed with CML in April 2016.
I was diagnosed in July 2016. If you have any questions please ask
Hi, No, I have CLL, but you are asking a question that I am sure will be answered. However what I have found is that whatever our diagnosis we all share the same fears, thoughts, feelings and 'what if's'. We are all here to support each other. Also don't forget the Leukaemia Care website leukaemiacare.org.uk and For support and advice:
Email: support@leukaemiacare.org.uk Freephone helpline: 08088 010 444
Opening times: Monday to Friday 8:30am - 5.30pm & Thursday and Friday evenings 7:00pm - 10:00pm.
Yes. I was diagnosed in 2000 and was in one of the first clinical trials for Imatinib. Still taking 600mg per day. First couple of years were shaky but I have been in full molecular remission since then.
I’m on imatinib as well AJA1717. Recently had dosage increased to 600mg as have been a slow responder. Finally got down to MMR but much more tiredness since I went up to 600mg.
The world must have been a very different place when you started on the clinical trials. Thanks for being a groundbreaker and ensuring that people like me have much improved treatment options.
Hi yes I have CML 14 plus years. Treated at the Hammersmith hospital. I also run the Hammersmith patient carer group. Happy to help if I can.