Coping with being ill for the first tim... - Leukaemia Support

Leukaemia Support

1,288 members807 posts

Coping with being ill for the first time after treatment has finished when your in remission.

Claire3489 profile image
3 Replies

This may sound silly, but how do you switch off from that panic mode when your feeling unwell. I was diagnosed with APML in April and responded well to treatment which finished in August. I am thankfully in remission. This morning I have woke up feeling like I am full of cold and can hardly swallow, I also have a couple of mouth ulcers and two small bruises on my leg, the first thought that crossed my mind was could my leukaemia of returned. I get regular checks every 3 months and last saw my consultant on 31st October but I can't help but worry in between, especially when your not feeling well.

Written by
Claire3489 profile image
Claire3489
To view profiles and participate in discussions please or .
3 Replies
LCNurse profile image
LCNurse

Hi Claire

It is difficult to stop worrying when you have received chemotherapy for leukaemia. it sounds like you have done well with your treatment.

It would be advisable to ring your Specialist Nurse or haematology to see if you can be reviewed. the symptoms you are describing could be just a cold but with your history it is advisable to have a check up worth your specialist team.

Claire3489 profile image
Claire3489 in reply toLCNurse

Thankyou, I didn't want to bother the ward as I'm sure it's just a cold, but I will give them a call just in case.

peterb2016 profile image
peterb2016

You never stop looking over your shoulder - any feeling of being unwell triggers that "What if" reaction. You are getting regular check ps, but if you are at all concerned, Im sure your health care team would be happy to see you outside those regular appointments. I see that this was posted 4 months ago, is I hope you have had the reassurance you were looking for.

Not what you're looking for?

You may also like...

Worried

Hi there, I don’t mean to write this post to be insensitive to those who suffer from this or have...

MDS and AML

Despite feeling lethargic and tired for over two years and going to the doctors on a regular basis...
sportydad profile image

Hairy cell leukaemia - 3 months after chemo

Hi, Telephone consultation with my haematologist this morning, rather stunning blood test results -...
frankmok profile image

HCL and feeling unwell

Hi - I had chemo for HCL just over 5 years ago but this winter have been feeling run down again....
emmieb-UK profile image

Persistent infections and always unwell

Hi I have been struggling with persistent infections for 3 months and am due for my hospital...
Hopeful123 profile image

Popular Posts

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.