Share your story during Hepatitis Awa... - HFI Connect - Hep...

HFI Connect - Hepatitis

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Share your story during Hepatitis Awareness Month 2017!

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Were you affected by #hepatitis? How? Share your story at bit.ly/2pMaoO8 . #endhepatitis

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thomasjo11

I was diagnosed with hep c in 2015, I went through treatment with riberferin & interferon which made me serverly I'll I managed to barely Finnish the treatment but my lymphocyte count keep,t rise,ing then in November 2015 I was diagnosed with chronic lymphatic leukemia ,which has worsened to acute lymphoma and the leukemia has turned aggressive I have large lymph glands on my neck and all over my body I recently went for an appointment to see my heamotagist and was admitted to hospital and told that I was serious my I'll i was in hospital for a week and caught a server chest infection I was not given antibiotics and was close to getting numonia due to having no immune system I was discharged shortly after due to being more at risk from infection and told Togo home I have not heard from my hematologist for over 8 months or since I had a cat scan with a dye which caused my veins exploding and causing the damage as shown in the picture sent in I also have not heard from the hematologist since having a lymph gland biopsy about 4 weeks ago my hands keep swelling up severe,ly and it is very painfull, the counsoltent or even a anethatist can not put a line in me due to my veins collapse,ing ,I have never been an iv user it,s seems to me that they don't now what to do and fell like they just don't care ,I was told I had one down from sihrossis and the hep c had been caught over 20 years ago and was only found due to the bullging veins in my neck which was a result of portal damage to my liver .I do fell that I have been mistreated due to it being hep c and there is still a stigma attached to it,and I also believe that as a result of the interferon I got leukemia as right from the start of treatment with it, my lymphocyte count began rise,ing I am hep free but by my notes you would think not,Thank for listening. T Jones

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thomasjo11

hi has anyone else who have had interferon and riberferine treatment sufferd from blood counts suddenly rise and keep rising indicating an underlying virus but results are negative then told 3 months later that you have lukemeia or cll and its terminal and becuse u have hep c u cant have cemo, becuse it can reactivate the very virus that you were treated for in the first place?? So who up for interferon ! what is the choice of the to evils hep c or luckemia cancer of the blood ??.