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HFI Connect - Hepatitis
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How many times have you told your story?

You’ve told your hepatitis story a million times.

Now, tell it to those who can do something to help cure it. Act now by taking the HepPRN survey. hepatitisfoundation.org/RES...

You have you told your story in support groups, to doctors, to family and others.

It takes a lot of time to tell your story many times over. But now, you have the opportunity to tell it in a way that translates to action for you and for everyone with hepatitis. The #HepPRN survey takes about (how long does it take? Insert here) to complete. You don’t have to do it all at once.

The Hepatitis Registry Network (HepPRN) securely collects health and lifestyle information regarding the lived experiences of those affected by or infected with viral hepatitis, by using a highly protected and private survey.

The result is that the data will be available to medical researchers selected by Hepatitis Foundation International, but allowed to see the de-identified data by you. Researchers will be able to contact you if you select that option to participate in research and clinical trials.

The #HepPRN registry was created by HFI International with input from our patient community. Please set aside an hour or so to do the survey. You do not have to do it all at once.

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