Hepatitis Foundation International invites you to help improve hepatitis patient outcomes by encouraging your patients to participate in our patient registry, HepPRN. There are several ways in which we can work together to recruit patients to the registry:
•We can send you postcards to give to your patients
•We will send you an email message that you can send to your email list.
•We can work with you to set up a customized badge to place on your Web site as an entry point for your patients
•You can refer patients directly to: hepatitisfoundation.org/RES...
The HepPRN patient registry is unlike other registries. It was created by HFI International with input from our patient community.
The Hepatitis Registry Network (HepPRN) securely collects health and lifestyle information regarding the lived experiences of those affected by or infected with viral hepatitis, by using a highly protected and private survey. It is a very interactive survey that gives patients feedback as they go along.
The result is that the data will be available to medical researchers selected by Hepatitis Foundation International, but allowed to see the de-identified data by patients. Researchers will be able to contact patients to participate in research and clinical trials if the patients select that option.