Which do you feel is the most importa... - Functional Neurol...
Which do you feel is the most important area to focus?
FND_PartnerAdministratorFND Hope AustraliaFND Hope UKGroup AdminFND InternationalVolunteerFND Hope••100 Voters
All areas listed of vital importance but if your GP has no knowledge or understanding then ability to access the correct treatment programme is lost.
All research and treatment programmes are void if at primary care level your medical professional has little or no knowledge of FND leading to lack of support and the correct treatment.
My feeling is that the primary area needed is research into the causes and "tests" that can show what is going on. Once the causes and methods by which we are affected are understood everything else will follow on naturally. Until then the medical profession will continue to argue amongst themselves, with many treating us with suspicion and often downright rudeness.
I am currently conducting research into causes and treatments and simply how people experience FND. My research is being conducted in Australia but I am happy to talk to anyone from anywhere online. If you would like to be a part of this research please message me.
Hi Amber, I was diagnosed with Fnd over 3 years ago & since then I have experienced a vast range of symptoms. I'm in the UK but if I can be part of any research into Fnd then I would love to help!
Amber - can you contact me. I would like to get your perspective and understand more directly from you what you are researching.
if we can more knowledge out into the public this may help patient and family along with carers . social media can bring this condition more publically know which will make more professionals want and understand how fnd is so debilitating and so little knowledge and facilities available for the so important rehabilitation
