What affects your participation (post... - Fight Bladder Cancer
What affects your participation (posts and comments) on the community? Select all that apply.
My GP And my consultant said "don't look at it on the Internet"!
I would strongly agree, there is so much bad advice and it usually ends up causing more confusion. I have full confidence in my Oncologist, I have had Radiotherapy on the bladder which ended in April, Chemotherapy which ended a few weeks ago, a scan has been arranged for the 26th September when I will get an update on the bladder and lungs, praying for good news. I have a catheter in since December 2015 and it could be with me for the rest of my life, I am 73 and hope to be around for a good while yet. I am being very well treated at the Belfast Cancer Center.
I am having regular check ups and BCG imunatherapy(?) I also have an unpronounceable cancer on the diaphragm ! Effects one in a million neither cancers are life threatening and I'm glad I wake up in the morning.
Good luck Dave almost 69 
My urologist said the same thing.
Don't like this poll...it seems to be asking why I don't participate. But I am an active participant, dutifully read others posts, and will post my follow up prognosis once I see my urologist next week. Who is this poll intended for anyway?
My urologist said he was pleased to hear that such a site was online. I told him I had learned a great deal about others situations, their treatments, diagnoses and prognoses. I do not see erroneous information up here! If a person Googles 'bladder cancer' then I can see some questionable sources, but I learn more from others' experiences, similar to mine, and how each approaches, copes, and shares info and feelings about their own personal situations...my doctor was genuinely impressed about what I knew prior to my visits with him...all from reading these posts beforehand. Please don't dismiss what is offered here as Internet nonsense...to understand bladder cancer, you learn most from people who are experiencing it or have had it.
I found this site invaluable while my cancer was 'active'. I usually only post if the person has the same problems i had as i dont want to steer them wrong.
Thanks
Moderation team
