I was diagnosed with RA 2 years ago. I have felt ill for years but put it down to OA, Fibromyalgia and menopause. My consultant was of the opinion that I have had RA for a very long time. I was relieved to have a diagnosis but worried about how I would cope living alone.
At present I am on two injections, MTX and Imraldi. I don't mind the jabs, but they are not doing anything for my symptoms which seem to be getting worse.
The main problem I have is making my family understand what RA is! Lockdown has had a really bad effect on my elderly parents who are struggling to cope. My mother has dementia and dad has deteriorated very badly. I believe they should have a carer to help form a routine for everyday things and to check they have taken their meds.
My brother seems to think that I should be doing anything that a carer would and won't listen to anything I say. I do as much as I can manage. It's all about money and if I could afford it, I would pay myself. They are not poor, but come from a generation who don't believe in paying for anything if family can step in.
Depression and anxiety is very strong down my dad's line and it has caused a lot of problems in my life. I have had years of therapy that have taught me that my problems come mainly from my very difficult relationship with my mother. Now that she has dementia (Parkinsons) she doesn't hide her dislike of me anymore and hates me being in their house.
How can I make them understand that RA is not just a bit of wear and tear? I can barely walk in the mornings and struggle to get down the stairs. I get so tired it makes me wonder what the point is. My friends tell me to stay away and insist that they employ a proper carer. They know the problems I have had in the past and worry that my mental health is suffering. Again.
I was in a good place but guilt is pulling me down again. Where can I find documents that might explain things to them and stop my brother bullying me.
I may not look ill, but I'm screaming inside.
Sorry for the length of the post, but I don't know where else to go. No chance of getting through to my docs and they just fob people off anyway.