What was your greatest source of supp... - Living with Fatty...

Living with Fatty Liver and NASH

8,253 members2,162 posts

What was your greatest source of support when you were diagnosed with Fatty Liver/NASH? Tell us about your experience in the comments!

CalvinHU profile imageCalvinHU44 Voters

Please select one:

13 Replies
katyjane75 profile image
katyjane75

I wasn't given any facts , I asked Dr. he said lose weight and there is no treatment no advice on what to eat or what not, several years later I still haven't been seen by a consultant or EP .

No help from doctors great help from social media and forums

Shirley52 profile image
Shirley52

There was nothing to do about the issue and HEP B so didn't get any.

healthyme1 profile image
healthyme1

I ws told iv got a fatty liver but haven't had any info,no help n don't know whether it's a bad percentage of the liver?, so I'm not tò sure where to look up info on the net either.

windiwendi profile image
windiwendi

The Dr just told me I was Terminal ...and nothing more ....researched the web myself for more information :( :(

Catherine2017 profile image
Catherine2017 in reply towindiwendi

Hi did you have liver Chrosis?

windiwendi profile image
windiwendi in reply toCatherine2017

Yes Catherine I have stage 4 liver disease :)

windiwendi profile image
windiwendi in reply towindiwendi

Yes I have Cirrohsis of the liver :) that had started out as Non Alcoholic Fatty Liver disease that has progressed to Cirrohsis :)

Catherine2017 profile image
Catherine2017 in reply towindiwendi

That's what they said about mine.

magpie363 profile image
magpie363

Just told I had fatty liver disease and should try to lose a bit of weight. No other info or follow up

Sharenvan profile image
Sharenvan

No one, not even my physician said squat. I eventually asked how the test results came out. The doctor just said casual that oh the results said you have a fatty liver and went on to another subject. I had to bring the conversation back to have him explain what it was. Since then I've been doing the research on my own with a lot of help from Google.

Catherine2017 profile image
Catherine2017

I didn't get any facts don't know what stage my Chrosis is in. Just worry all the time .

arlene001 profile image
arlene001

Was told I have Auto Immune Hep. and that I need to lose weight and no alcohol. I don't drink. Was put on Vitamen E 400 mg twice a day. That was almost 2 years ago. Liver enzymes are always good. My story is that I had went to the emergency room 2 years ago next month with pain. They did a CT scan and said it was a kidney stone. A couple days later I ask for a copy of report, found that my liver was severely enlarged. Then I remember that 4 months prior my PCP had done a CT scan and said everything was fine. So I ask for a copy of that report and found they were the same. No one said a word. Needless to say, I found a new PCP. She sent me to the Gastro who done an upper and lower GI and a liver biopsy... My PCP done allot of blood work and then sent me to Rheumatologists because I was testing positive for Lupus at a low titer and nothing has came of it yet. But I do have osteoarthritis, fibromyalgia, barrettes esophagus and Diabetes which all has developed since the auto immune hepatitis diagnosis. I'm wondering which autoimmune disorder will come out next. I'm beginning to think we are just test subjects that the medical field gets paid to play with. I'm sick of meds and I'm sick of believing that I have this liver problem when I'm not sure that I do or at least I am wrestling with believing it. I ask if I was having another biopsy. He said no, I ask about a CT scan and he asked why? I said to see if its gotten worse. He said no he didn't want to expose me to any more radiation than I have to be. But my PCP is going to do a ultrasound to check it.

Moderation team

See all
AfternoonCoffee profile image
AfternoonCoffeeAdministrator
SuryaGP7 profile image
SuryaGP7Moderator
RobynD profile image
RobynDModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.