Our son is really struggling with life. Attempts to get support for him and our family have had at best very patchy success. CAMHS were worse than useless. After asking questions relentlessly for a good 10 years now, we believe that our son has FASD. Given all we know about his birth mother etc, we would be extremely surprised if this was not the case. One health care professional has seen all the information we have and confirms our conclusion. I realise that this is not a formal diagnosis, but it really would be a surprise to be told we are wide of the mark on this.
I'm not sure whether he will agree to a referral to the FASD Clinic. He has found his way into the criminal justice system and while in prison he was regarded as a vulnerable prisoner. He has recognised learning difficulties, including a Vinelands Test. Before his release from prison last December, his vulnerability was acknowledged. For the first time he was asking about supported accommodation and the local council offered two alternatives. Those were cruelly withdrawn 5 days before his release and he is now in totally inappropriate lodgings. His budgeting skills are poor (mind you I would challenge anyone to manage on the income he receives). The council has continued to refuse to support our son and claims they don't have the resources (the Chairman of our Adult Safeguarding Board has just resigned, claiming the incessant cuts in funding under Osborne's austerity policies are making it extremely difficult if not impossible to support vulnerable adults).
My fear is that it is all too late for our son. Years have been lost during which he could have been helped to understand his situation. I am very unclear about how well he will be able to cope with life in the future, and whether he will ever learn to budget.
Does anyone have experience of a late 'diagnosis'? How can he be supported constructively? How can we help him to understand what he is capable of and access appropriate support?