HAVING FACIAL BELL PALSY 13 TIMES !

[Jazzmanstar]

I'm 57 yr old female

I was 9 yrs old when I first had Bell Palsy

it was 1969 . I was in the 4 grade and it was such a traumatic experience, something that a child could ever go through. Being called pirate because I had to wear a black patch over my eye it would not close at all. the treatments I went through were so severe back then.I would receive 5 shots of steroids in my head and electrical Heat shock behind the ear of the side that was paralyzed. I went through a lot of pain, I don't know who decided that it's just mild pain we experience ,mine was very painful each time it came back .I would lay in my bed and hold my head trying not to cry for this made the stabing pain worse.,

If anyone has ever experience, When it fills like a nerve has snap on the side of your head and it literally takes you to your knees from the sudden force of the pain it has caused and after you have a bad vibrating ache that stays for awhile .While this is what type of pain I had every time .One after another. Back then they did not understand the cause of Bell Palsy. My treatments would consist of electrical wires hooked up to my head so that they could monitor my brain waves I guess. that's about what I remember I was so young and distraught because of this. I was left with bad paralysis always being made fun of because my eye was so droopy and did not shut all the way and how my mouth droop, I cannot Pucker whistle or drink with a straw. I've had it on both sides of my face until the time I was 47 years old each side of my face has been affected with this. I could go on and on about what I've been through in my life with this awful thing it is something that you do not take lightly ! I don't know why this happened I was told one in the million gets this I had it 13 times.The last time I went to a neurological specialists he was so excited when I walked into the examining room he had said he had been waiting for me and apologize for being so excited that he had never met or heard of anyone having it 13 times and on opposite sides of the face.He already had a release paper for me to sign stating that he would be honored if I would give him permission to use my history of having Bell Palsy at a conference of neurological surgeons that he was attending and I signed it. And as I stand today at the age of 57 years old and everything that I have gone through with this and the sad moments and, moments when I feel like I couldn't go on no more I always said I'm a donor on my driver's license I would love some how for my body to donated for this type of research so they can slice my brain and head into thin pieces and find out what causes this to happen so hopefully they can help others , and find a cure or prevent it from getting any worse than what I had I know that sounds crazy but that's how I feel thank you

[Launder01]

I hope things have improved for you 💞 I was sad to hear what you’re going through 🙁 I have Facial Pusey due to having brain tumour removal. That in itself was a shock, but I after the operations I have been let with right sided BP. My last operation was 2 months ago. I don’t go out much, as I feel embarrassed.