Struggles R real but trotting on - Encephalitis Inte...

Encephalitis International

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Struggles R real but trotting on

Heavychunky1 profile image
4 Replies

Good evening everyone hope you are all keeping great,

The mind ponders the situation, all of the what if this happens, what if that happens and at times it sure feels like your running circles around a dead end track with different hurdles randomly arising to test us out, I do long to be back to some type of normal that I was before the hsv encephalitis , struggles with moods jumping from good to bad and worse like the flick of a switch, I will get back to something maybe not exactly the way I was but close to it, I do feel fortunate that my after effects are some what minimum compared to some , I am just grateful that my memory has not been affected although I do have a dead section of brain on my left temp lobe, this has to be without a doubt the hardest thing i have ever encountered, I survived and I am still here, and have a great partner and kids who God help them struggle with me and i know it's not easy for them at times but would be lost without them,

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Heavychunky1 profile image
Heavychunky1
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4 Replies
Wygella profile image
Wygella

I love your title. Sums up my last 3 and a half years perfectly. (The first few months I didn’t have enough brain or energy to stumble on never mind trot!! 🤣). When I read other E warrior stories I realise how fortunate you and I are. We don’t always feel it I know but we’re here, we’re improving, we both have such supportive partners and our memories, on the whole have remained. I’ve discovered over the years that things I thought were right, or timings or whatever and actually they’ve got jumbled up together. Really disconcerting at first but I can laugh now. And I never needed lists for anything but now lists are my friends!

Anxiety can still grab me unawares but I’ve much better techniques for dealing with them and mood swings sooooooooo much better. Hardly notice them these days. Apart from those wretched crash days but again they are fewer and further apart. So keep trotting on HC. Our old normality is pre E. But our new normality is precious.

Mnt2sea profile image
Mnt2sea in reply to Wygella

Love your words. We are precious. Life is precious. Acceptance is graceful. Trot on my E peeps.

Gandalf2 profile image
Gandalf2

Hi HC, glad to hear you are trotting on. It is a long and often painful journey but my experience is that I/we am/are getting quite a lot back brainwise but very slowly. At the moment I'm on immune suppressants to stop my brain inflaming itself and any infection is potentially fatal. I'm also on anti-biotics to treat a water infection or UTI which are working nicely but this keeps happening and taking a repeated series of ABs is not good for one's overall health.

I think that I must take more thorough steps to ensure my urinary tract and man parts stay clean and pure.

Thankfully I have no vices to speak of - even an odd pint and roll-up has lost its appeal. I'm reading a fair bit these days on the origins and beliefs of Islam plus research on the internet on word origins. 'Happy' and 'cheeky' are good ones

I play patience and dominos with my wife of an evening and we have a great laugh. Two nights ago as I was putting out the wheelie-bin I heard an owl hoot. I answered its call a few times and got some replies. Thankfully it did not offer some advice on aromatic healing oils. All the wildlife is getting a bit frisky these days so I have to keep my bird feeders and table replenished to give them stamina for the months ahead.

I do find Epsom salts baths help me to relax and am considering revamping my bathroom to resemble something more exotic. I didn't know that the 'arabian' horseshoe-shaped arch was invented by the Visigoths who were quite a cultured lot it seems. We live in a world of wonders, too many to explore them all.

Yours Encapathically G2

Mnt2sea profile image
Mnt2sea

Heavy chunk, I feel ya. We serve a great and mighty God. Keep going.