Been having weird sensations recently daily, starts off with a faster heart rate and internal body shakes like shivering, first time I had this it lasted a good hour. Now there happening daily in morning before I get out of bed . First one I had happened at night just as I laid down, Iv just been putting it down to stress and anxiety , hopefully nothing more than that, other than this my recovery from encephalitis is going decent, slow & steady, still have the odd headache not as bad as they used to be, eye sensitivity and sensitivity to smells and loud noises , so here is hoping I can eventually get back to work in some way but that has its own issues such as dvla actually making a descision on my licence and my doctors all agreeing that I’m fit enough to return, as far as medication goes still taken omaprazole . and paracetamol only when needed , doctor has increased omaprazole to 2 tablets daily, now got a nausea feeling and a little vomit due to increase, going to have to try get a face to face with my doctor and talk about these omaprazole I know I am taken them for acid reflux and to help with Globus sensation , but must be a more natural way
Encephalitis update: Been having weird... - Encephalitis Inte...
Encephalitis update
Hi HC, could be a lot of things. Here's what we do.
Faster heart rate? is that 80bpm or 120bpm?
How do the 'palpitations' last?
It would make a lot of difference.
We've bought a blood pressure meter which wraps around the upper arm.
It measures pulse rate and blood pressure.
We also bought a clothes peg type of device which fits on a finger tip and measures oxygen levels and pulse rate.
Plus a digital in ear thermometer.
These are the first things we refer to when feeling different.
If all these readings are normal we don't worry.
We haven't contacted the DVLA and are hoping I should be able to drive fairly soon, just on our own assessment. Good luck with that.
I was told to take pain relief on a regular basis as a maintenance dose - I have several compression fractures in my spine which are not Enc related.
Paracetamol, Ibuprofen and morphine sulphate at 4 hourly intervals.
The Enc and other medicines side of things is more complex, seizure prevention, steroids etc. about thirty tablets a day, this list includes medicines for other problems too. -
Mycophenolate 750 mg twice a day -
Levitiracetam 1000 mg twice a day -anti seizure
Fluoxetine 150 mcg one in the morning ** - depression
Lansoprazole 30 mg one in the morning - digestion
Tamsulosin 400 mcg one at night - prostate
Zomorph 30 mg one every 12 hours - slow release morphine
Alendronic acid 70mg one a week * - bone growth
Gabapentin 300mg 2x3 times a day - anti seizure and pain relief
Some of these are for osteoporosis * some for depression **.
I also take thyroid medication for low thyroid (levothyroxine 150mg, one in the morning) - worth having a blood test to check that out.
Mine has been low for decades - leads to depression and fatigue.
Epsom salt baths are good, a healthy diet, no alcohol, exercise when you can.
Rowing machine, cycling, walking - keep pushing - no rushing.
Little and often.
No sense of taste or smell to speak of - everything tastes like nothing.
Any stimulus can be overwhelming - noise, visuals, too much mental activity, difficulty making choices or reconciling contradicting information - mental panic and confusion result.
I have to sit or lie down until the confusion/vertigo passes.
I still haven't tried going to a supermarket, a bus ride or any crowded, unpredictable situation.
Work within your limits and keep your challenges achievable.
I spend time on the internet doing research and watching old Rolling Stones and other R and B videos.
It's a long road and quite bumpy but you will continue to improve and if anybody else's experience is anything to go by, you stand a good chance of making a full recovery. 
I'm 71 and retired so I don't have the challenges of the work environment to deal with.
If you're managing work too you are doing very well.
I'm not a professional just a patient.
Bravo and best wishes!
G2
Hi good afternoon hope you well, funny enough just bought the arm blood pressure and finger tip pulse oximeter yesterday and blood glucose tester , something the missus has wanted to get since I got out of hospital , maybe won’t be as accurate as the hospital ones but a basal guide line I’m sure will help , especially the spo2 oxygen part, time will tell hopefully in a good way . My work is dependant in dvla pulling there finger and talking to my doctors 15 weeks been waiting on them, calling them is next to useless the music they play while waiting seems excessively louder but maybe just one of the sensitive issues ,
Hi HC, Good Luck with the gadgets.
We find them reassuring when I start to feel a bit dizzy etc. and they may prevent or reduce the unnecessary phone calls to the GP when I'm just having a phase of some sort.
We are not sure of the signs of an oncoming seizure, I've had seven apparently with resulting hospital stays and adjustments in medicines. Mistakes in speaking seem to be first sign but the anti-seizure tablets may to have got them (the seizures) under control
I seem to be OK now but I've been sleeping a lot recently - 20 hours last night. But this was after a long walk around the locality last night. So to be expected I guess. No sense of taste. Vision OK. Fatigue. Can still laugh at things. Drinking lots of tea. We carry on, it's still an adventure.
Best Wishes G2
Hi there!
Thank you for sharing your story and what you are experiencing right now.
It’s great you are so self aware of your symptoms and side effects of encephalitis. When you feel your heart raising and have shivers it might be helpful to focus on your breathing and try to visualise counting to 4 in your head. Breath in and count 1..2..3..4 and out 1..2..3..4. Focus on the breathing in and out. Notice how your body reacts to this. Hopefully your heart rate and the shivers will start to subside. Sometimes it’s great to be guided doing this… here is a helpful video: youtu.be/c1Ndym-IsQg
I find it helpful to communicate any symptoms with my doctor on a regular basis. It might be good to keep note of symptoms so you can report this to your doctor!
