COVID Vaccine : Hi, just wondering when... - Cystinuria Support

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COVID Vaccine

Tkirrage profile image
7 Replies

Hi, just wondering when we will get the vaccine. Are we class as vulnerable. Thanks

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Tkirrage profile image
Tkirrage
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7 Replies
MattBultitude profile image
MattBultitudeAdministrator

Hi Tkirrage.

In the UK the vaccine is being given in tier groups and currently on Tier 4 - which is >70 years of age or “Clinically Extremely Vulnerable” (CEV) - as defined here:

gov.uk/government/publicati...

Cystinuria on its own doesn’t classify as CEV. So I would say that it would be in Tier 6 (people with underlying health conditions) as defined by the government here:

gov.uk/government/publicati...

Hope that is helpful.

Tkirrage profile image
Tkirrage in reply to MattBultitude

Thanks Matt, I wasn’t sure so yes this does help. Thank you.

Weightlifting_panda profile image
Weightlifting_panda in reply to MattBultitude

Hello Matt

I’m sorry to ask this question when I understand the NHS is under such pressure at the moment but I have a follow on question from this.

I think health conditions falling within Tier 6 have been more closely defined now. This states you qualify for Tier 6 if your CKD is at stages 3-5. assets.publishing.service.g...

Based on the definitions of those stages I can’t imagine I qualify. I have a solo kidney and cystinuria (no other known comorbidities) but I don’t think this would fit the definition in the guidance above?

Assuming I don’t fit the narrow criteria for tier 6, is it worth asking the GP to make a judgement that I should be treated as clinically vulnerable and given the vaccine in tier 6?

If it wouldn’t be medically advised, then I wouldn’t wish to queue jump. However if I am at higher risk of severe symptoms from C-19 then I would wish to flag this with my GP. I have read about how C-19 can trigger AKI so I would like to raise the question with my GP if you think there are medical grounds to do so.

Although I have asked about my situation I am sure your answer would help others too.

I hope you and Kay and the team at Guys are well. Best wishes

MattBultitude profile image
MattBultitudeAdministrator in reply to Weightlifting_panda

You are right they have updated the tier guidance. So it does depend on kidney function level (eGFR<60) or other co-morbidities. We can’t give individual advice on here but if not at CKD3 level then reasonable to assume that the JCVI has judged that as lower risk although impossible to quantify risk.

I know that is vague but impossible for us to say.

Matt

Weightlifting_panda profile image
Weightlifting_panda in reply to MattBultitude

Thank you for taking the time to reply Matt, much appreciated

Catty8 profile image
Catty8 in reply to MattBultitude

I had to fight to get my jab as my lungs are so bad ! Let along CEV ! Got it last week x

neilsss profile image
neilsssAdministrator

Hi - I was invited to have a jab 2 weeks ago; I'm 49 and a bit overweight but no other health issues so perhaps Cistunuria is being accounted for