NHS Card: Has anyone got one of these... - Cystinuria Support

Cystinuria Support

NHS Card

AwesomeAT profile image
8 Replies

Has anyone got one of these cards, and where did you get it, UK patients

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AwesomeAT profile image
AwesomeAT
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8 Replies
Lr1968 profile image
Lr1968

Hi

Yes I have one of these and keep it in my purse.

I was given mine by my consultant Kay Thomas when I had a check up with her at Guys hospital.

If you are not being cared for at Guys to ask for one there, I wonder if your hospital would supply them also.

They are a great idea as local hospitals and doctors have not always heard of the condition.

Hope this helps.

AwesomeAT profile image
AwesomeAT in reply toLr1968

Hi thank you, we are in North Yorkshire so I’ll ask our local hospital next time we have an appointment, I have Autisim too so sometimes gets a little difficult

Fatmir profile image
Fatmir

Yes I have that card and I get it first time when I see my urologist in Gay hospital

Tkirrage profile image
Tkirrage

Yes i have one, Guys hospital gave me mine, keep it in my purse.

AwesomeAT profile image
AwesomeAT in reply toTkirrage

Thank you we are in North Yorkshire so will ask our local renal guy

AFCWombles profile image
AFCWomblesAdministrator

Picked mine up at a Stone Clinic a few years ago

AwesomeAT profile image
AwesomeAT in reply toAFCWombles

Thank you we are in North Yorkshire so will ask our local hospital

bertrussell profile image
bertrussell

Hi I don’t have one of these cards and never knew they existed. Would be better if the NHS issued this for individual consultants to fill in. With about only 75 patients with cystinuria in the Bristol area a big expense for the hosp for that number. But would be very helpful to us as patients as this is not a common disease and the knowledge in the smaller hospitals isn’t there as I have discovered over 66 years.

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