I am caregiver for hubby 24/7, he has PD... - Cure Parkinson's
I am caregiver for hubby 24/7, he has PD & NHL. Are there other caregiver's on this web page - we are 79 and 83. Best Friends also. : )
how wonderful yiu are - i am the one with pd and my husband is my full time carer as i cant wakl now without his help or a wallker - but i cant get him tio get into this blog - he hates computers !!
Shasha how great to hear from you. i had a rough A.M. and am so behind.
but I had to say hi! My husband (we call him "Pak" last name. ) does not use the computer. He is very smart but doesn't care to go on line. I have had his email transfered to my aol account. He took a fall last night. My neighbor helped get him up. This A.M he slipped almost to the floor. I managed to get him up with pushing-pulling putting a stool under his feet etc. He finally got up back on the bed and I helped him dress because when he is tired it is too much effort. He has to use a walker all the time..when we go out it is a wheelchair.
He has that stiff kind so he tips over easily. I think your hubby is great to
be there for you. My husband was retired but still on the go as a translator etc for the elderly in the Korean Community and took people to Dr.'s and Hospital
He started a group meeting place for Veteran's with the free use of the
community room. Never ill and never home. We were planning when he
reached 80 to have a little more time for just us. Then he got ill with
Lyjphoma and also it came out that he had Parkinson's also.
Please tell me about yourself. I will have you in my thoughts.
Janet. My best to your hubby.
Hello Janpak and Sasha,
My husband is my carer and he takes wonderful care of me. We also had big plans to travel and have time together when we retired but, like so many here, my Parkinson's and his back problems have blown most of those dreams. We do try to travel from Colorado to Phoenix, AZ in the spring for baseball training camp...we love to watch all the games we can pack in in 10 days..lol...and we travel to TX and KS as often as possible to visit our kids. I was diagnosed Oct. 1997, after my mother died of breast cancer...I started out on Eldepryl and Amantidine for the first 5 years, of which I was able to work and still lead an active life.
At about the 6th yr my docs added Mirapex, which was wonderful for about
18 months....during that time my father died after a time with Alzhimers and PD, and I inherited a good sum of money. I wound up loosing most of it gambling online and shopping everyday. I bought things and would sneak them into the house....later finding out this was a classic side effect of Mirapex. My doc took me off of it and we tried several meds that just didn't work well for me...Buspar, Adderall,....I ended up having to find another Neuro Doc do to insurance, and was taken off the Amantidine and back on Mirapex. After about 3 months I found myself falling asleep while driving...another effect of Mirapex...and took myself off of it. I think the Eldepryl and Amantidine really worked great in the early days and helped me with best results . Now that I have been with PD for over 15 years, I am on my third Neuro Doc and am now taking Stalevo 200 and Requip XL. I take several other meds for Low blood pressure and gurd...and of course for depression and anxiety. I no longer am very active and Imam paying for it...I know I should exercise and take walks but I just don't have the Initiative or energy.
Wow...I'm sorry for rambling...I have been a member for a couple years and haven't written so much. Lol...btw..I am 58 and my husband and best friend is 62.
I would like to tell all newly diagnosed Parkies to stay as active as you possibly can..that really does help! Thank for listening and I hope to talk to you both again....any questions, this is great place to find answers and friendship.
My husband has PD and can't get on the computer. I ask him questions about this site and he answers. I take care of him, but for now it isn't full time . The rate he's going it won't be long though. I work full-time and we have 2 boys still in school, so I have my hands full. He also can't get around without his walker. Very soon now we'll need a wheelchair. Also just found out he's having seizures. And it maybe from the site he had one of his DBS surguries. We have to go to Birmingham this Thursday to get it check out. Usually a 3 hour drive, but with Daniel it'll take much longer because we'll have to stop and hope he can make it out the car to the rest stops. Will take the urunal with us. He just turned 50 this year and has had PD for 8 years now. Things have gone down very very fast for him. He use to be active, but now he only goes out to the doctor. He's usually on the floor laying down.
I hope the trip will turn out OK My Hubby only goes from bed to the living room chair that supports him. We are going to the Oral Surgeon this morning.
He had to have all his teeth removed. The Chemo for the Lymphoma and other
meds etc. did a job on them. He had filling and cleaning but in the end
it was the way to go.
Your husband is similar to mine except for age . Trips to the doctor are my only outing now. My son does the driving. He worked yesterday to get caught up on his projects at work.
Keep in touch. Take care, Janet
