Does anyone no anything about Parkinsonism?

[Gloria-John]

[jillannf6]

hi i have PSP which can en said 2 eb "parkinsonism"

it cna mimic parkinsosn but a different part of teh brain is affected and teh ojtlook is not good

but i am sitgll here 2 yrs onfrom diagnosis and still uprigh t most of the tkime

lol JIll

[Carrigan]

If you Google some good definitions on there. X

[Bitbit]

Good for you Jill! I am still learning about all this.

Hugs. Jane

[hilarypeta]

I thought it was just a general term when you dont fulfill all their symptom criteria..as in my reflexes all work well but i have stiffness of ankle and wrist on one side , slight tremor sometimes in right hand fingers...etc

[Pete-1]

As hilarypeta said and it describes all PD like conditions from Essential Tremor to Huntington's Disease. Also includes MSA, PSP, CBD and PD and probably some I've never heard of.

[Hidden]

I have read the definition of Parkinsonism which it seems covers a multitude of sins. I also think the doctors use it when they are not sure.

I did read if doctors believe you are suffering a form of Parkinsonism and they treat you for PD itself, and if that treatment responds then they know you definately have PD and not Parkinsonism

How true that is I am not sure.

[shasha in reply to Hidden]

that is very true - as my french neuro explained - you can pretty much call it ;parkinsonism if your syptoms dont respond to the usual levadopa drugs

[PatV in reply to Hidden]

That's what my neuro says. If the meds relieve the symptoms, it's PD. Doesn't matter what the symptoms are. In my case, I couldn't move my left ankle and inner thigh became so rigid I got tendonitis. Took a while to diagnose.

[Pete-1 in reply to Hidden]

Certainly a poor response to levodopa tends to indicate a case of not PD.

[hillsborougnjhpd]

read "(no offense) "Parkinson's disease for Dummies" by dr Tagliati by

[Joyable in reply to hillsborougnjhpd]

Thanks - I can use that!

[bmiairo]

PD is an illnes with different simpoms.the diagnostic was

given after a computer scan.

[Koko]

I read from your question that you may be asking if any doctors even know about Parkinsons. I have found very few do. Maybe it is because there are so few of us that it isn't worth their time . I have met a few that have never even seen a Parkinson patient. I was on a cruise once, and went to see the ships doctor.HE was so excited to meet a Parkinsonian that he called in his nurse and others to take a look at me. You might want to get the book, "WHat Your Doctor May Not Tell You About Parkinson's DIsease"by Jill Marjama-Lyons MD

[Gloria-John]

Thank you for all your answers. His Dr. was treating him for Parkinsons, but now says it may be Parkinsonism. And what I have read, you have symptoms of Parkinsons, but the meds don't work for you. Thank you Koko, I will for sure buy that book.