Friendships, associations, and even famil... - Cure Parkinson's

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Friendships, associations, and even family members still remain strong despite your PD diagosis

ma4PDcure profile image
10 Replies
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ma4PDcure profile image
ma4PDcure
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10 Replies
jupiterjane profile image
jupiterjane

I think, our families and friends, like us , do the best they can with the havoc, that Parkinson's Disease has made in their lives. They just got the better end of the damn stick.

None of my family know I have Parkinsons, (only a couple of friends) neither have I chose to tell them.

I dare say they will eventually find out, but until then I keep it quiet.

When I see them I just say ''It's nobbut old age an' poverty, an' a bit o' rheumatics ''

We all have our cross to bare, I would never think I got the worst end of the stick.

I am thankful it is me that has it and not any of my siblings.

PatV profile image
PatV

Everybody in my family's got something. 2 brothers and a son died from alcohol related problems. My daughter's got a TBI (traumatic brain injury) which has altered her personality such that we rarely see each other. My mom is 92, and doing OK. Wish I could spend more time with her, but my sister who lives with her has 9 cats. I'm grateful for my friends and family who still love ME (I'm still in here, hello!!!) and are not swayed by my ailments. And for you all . XOX pat

grammieof3 profile image
grammieof3

Most of my friend and family act like nothing is wrong i like to shake them up sometimes and say so you want me with pd to do what? Its all in good fun. I have pd it DOESN'T have me8

grammieof3 profile image
grammieof3 in reply to grammieof3

Sorry about the 8 on end of me guess that was pd having the last word ha ha

ma4PDcure profile image
ma4PDcure

PLEASE NOTE CHANGE IN THE QUESTION POSED ABOVE Sorry fellow PD colleagues. When I typed the main question above I did not realize my typing did not come out exactly how I wanted it to be posted. What I meant to ask was: Do you feel that personal friendships, associates and family members remain the same since your PD diagnosis and subsequent life changes as it may have occurred or do you feel that you are less acknowledged, respected, or sought after or even included in any activities you may have had in common with anyone in your life or in your past? Have you felt that now you are a second class citizen, no longer equally worthy to others or been overlooked or treated differently now that you have PD and been battling your disease?

jillannf6 profile image
jillannf6 in reply to ma4PDcure

HI I FIND that somep people have ddropped me or say i look fine and do not understand the nature of this PSP

I tend to not let it bother me bt obviously it DOES

peopel i think r embarrassed cos mh speech has got worse tooo

lol JIll

:-)

charlton profile image
charlton

still got coming out to face not looking forward to it only my wife knows!

Everybody has been great! Maybe a little pity here and there, or lack of comprehension (someone told me "I know you'll get better") but no complaints from me. And everybody knows.

purelabor profile image
purelabor

I think my wife wants out. She says she wants someone to take care of her. I don't blame her. I still do what I can for her. But she has gotten spoiled and now it is being taken away from her. It is hard on two people to go through something like we are, but we have to push on. Sometimes I think would be better off alone and have to worry only about myself.