I have PD 5 years. It is gettig to be like an old friend. All of my social activites are planned around it.

[FrankBerson]

I have free theater.tickets can I go? I hope my symptoms do not start up. I can try not to eat any food that will set me off. OR NOT EAT AT ALL. Ball games must have tickets near the bathroom., I look at the other people in the ball park do they have to go thru the same ordeal?

Frank

[wifeofparky]

My husband is the same. We try to plan ahead but it is not easy. He couldn't attend our granddaughters' dance recital because of the venue.. He wants to go to their ballgames but it depends which diamond they are on. Ij it is too far from the lot, he may get there but not be able to walk back to the car. He is too proud to use a cane or walker and I don't know how to get him to swallow his pride.

What foods set you off? He doesn't avoid any foods just makes sure he takes his sinemet on an empty stomach,

[debbie66 in reply to wifeofparky]

My husband is very proud,he went totally mad when we got him a wheelchair,but after a lot of complaining from him and some explaining from me,he allowed it to be carried in the car.Now if he is struggling he lets me get out the wheelchair,sometimes he will just push it himself but if he is having a bad day he gets into it and i push.Persevere thats what I did.We bought the chair from the internet and it was a lot cheaper than buying from a mobility shop .Ask your husband if he would be ok with this ,you may be surprised,

[Jimshasky]

Taking mess on an empty stomach is THE ABSOLUTE KEY for me too. With food just before meds is a disaster. Nothing else about this PK is absolute. Every day something new.

This thing, Parkinsons is like a Russian novel, Up and down, up and down, but it never ends.

[debbie66]

Hi Frank, we live in the UK and my hubbie has PD .On the odd occasion we go anywhere I always check to see if they have facilities for disabled.Our local theatre has seating for people with disabilities,at the end of the row,near to exits and not far from the toilets.I have found if you just explain why you need to be in a certain area no matter where you are going,they are usually very helpful and will do everything to help you.He also takes his meds before eating and this helps a lot ,he also has a nap before we go so he can enjoy his day out .If it is an evening out he always takes an extra set of meds otherwise he goes off about 8pm and he can find this very frustrating.

[tlongmire in reply to debbie66]

Would 8 pm be his normal dosing time or does he take an extra dose on those occasions?

[debbie66 in reply to tlongmire]

His evening dose is usually about 6pm,but if we go out he usually needs an extra set of his meds by about 8pm and he has a tablet(medopar) that he takes before bedtime which helps him during the night.

[tlongmire in reply to debbie66]

Thanks.

[PatV in reply to debbie66]

I do this too. I'm required to take meds with a snack so I am always snacking places I'm not supposed to. Carrying juice or crackers. Also have to be close on aisle. I got over my fear of dependence on walker even though I don't need it indoors. ADA here in the states have made most places accessible. Still by 9 pm I am turning into a punkin for real!

[FrankBerson]

Happy to be out and about