domperidone: Hello all! Has anyone had... - Cure Parkinson's

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domperidone

MissRita profile image
17 Replies

Hello all!

Has anyone had experience with taking domperidone?

Any info would be great. Thanks so much!

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MissRita profile image
MissRita
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17 Replies
Pegcity profile image
Pegcity

My husband Pwp has to take it to move his food along. It is available here in Canada but I am not sure in the US.

MissRita profile image
MissRita in reply to Pegcity

Thanks so much for the information. Looks like my doctor he’s going to help me with getting a prescription. Any side effects for your husband?

Pegcity profile image
Pegcity in reply to MissRita

He had no side effects and it helps with the nausea. I can't exactly remember but I think the pharmacist said there is a potential side effect (concerning the heart) if taken with an SSRI. However, it is so rare that it is not an issue. He has been on it for over 2 years and there have been no problems.

MissRita profile image
MissRita in reply to Pegcity

Thanks so much for the information. I am not on any SSRIs so I should be OK I’m hoping. I don’t need it for nausea and in as much as for the motility in my gut. What happens for me is anytime I eat anything or drink anything but mainly foods my whole body shakes until it’s completely digested and it is a relative pain in the ass! Lol

MissRita profile image
MissRita in reply to Pegcity

Can you tell me what Canadian pharmacy you use? I just received a notation from my doctor stating that they will give me the prescription but I have to find a Canadian pharmacy that has a doctor that will actually take my script and then prescribe it to me from Canada. Does it make sense?

Pegcity profile image
Pegcity in reply to MissRita

I will check around and get back to you.

MissRita profile image
MissRita in reply to Pegcity

Thx

MissRita profile image
MissRita in reply to Pegcity

Orders! Should be here in a week!

aquario profile image
aquario

When I was first diagnosed with pd and given sinemet I had considerable nausea. My doctor recommended domperidone, available only from Canada. I got a rx, took it, and within a few days my nausea disappeared and has never returned (I've had several incidents of nausea since but most likely caused by something other than C/L). This is near;y 20 years later.

MissRita profile image
MissRita in reply to aquario

I wish I could go to Canada to get a prescription. I mean even if there We’re no Covid could I get a prescription anyway?

MissRita profile image
MissRita in reply to aquario

Do you live in the United States?

LAJ12345 profile image
LAJ12345

My husband was given it for nausea with Kinson C/L but we decided that he wouldn’t take the domperidone unless desperate as he reacts badly to most medications , then he changed to madopar and that wasn’t as bad, and now he rarely gets it. We are careful to separate the madopar from any protein by at least an hour.

aquario profile image
aquario

It's been almost 20 years since I had the prescription filled, but I'm sure it's available to those of us who have an MDS whi's willing to write you the rx. Who prescribed domperidone? Ask him/her to fill an rx. And then online I found a number of pharmacies in Canada who would accept it. search.aol.com/aol/search?s... pharmacy domperidone

MissRita profile image
MissRita in reply to aquario

Really?? I have to ask my doctor.

MissRita profile image
MissRita in reply to aquario

I’ve never had to give them to me but I definitely need it.

aquario profile image
aquario

Had no trouble in California. Any competent neurologist should be able to get you a prescription. My Movement Disorder Specialist is Dr. Nengchun Huang in Los Gatos Calif. Call the office and tell them that Jon Scoville, one of his patients, recommended him. theparkinsonclinic.com/about-

MissRita profile image
MissRita in reply to aquario

Oh my God I definitely will! This is so kind of you. I live in New York State and our medical community is so conservative and so tightlipped it’s so difficult I can’t tell you.