FUS in Switzerland

[Parkygal]

Last November I had FUS PTT in Solothurn, Switzerland. The left side of my body was treated and has been a success in that tremor is almost completely gone from that side. However, my right side is still slightly worse as far as tremor is concerned than pre-procedure with the addition of balance and slight freezing problems, as well as lack of energy. Turning over in bed is now difficult as is getting up out of armchairs. Some improvement with bowel function since procedure. Would be grateful for info on similar experiences.

Thanks

[ion_ion]

I'm planning to have the procedure , too. For how long do you have PD? Thank you for your post.

[ion_ion]

Also as far as I remember Marc and Lena reported very good results on the treated side and some worsening on the other side. Recently Lena had the other side done and Marc is scheduled , I think, in April.

[Trixiedee]

I sent you a message a couple of weeks ago but never got a reply.

[Parkie- in reply to Trixiedee]

Same for me and no reply...

[Trixiedee in reply to Parkie-]

Sorry I thought I was replying to Parkiegal.

[Parkygal in reply to Trixiedee]

Sorry Trixiedee, could you repeat the question please. Parkygal.

[Trixiedee in reply to Parkygal]

I sent you a long message a few weeks ago and didn’t get a reply.

[Trixiedee in reply to Parkygal]

I don’t understand why you post this and don’t respond to any answers.

[Parkie-]

I mean I've written a couple of replies and a private mess to Parkagal but never got a reply.

You, you always answer, Rebecca👌

[MarionP]

Would also like to know anyone else's answers. We should be accumulating experiences and memorializing them here.

[Trixiedee]

I don’t have and have never had a tremor so it’s hard to compare my experience. My untreated side is better than before but I’m still on Sinemet, just with no side effects like dyskinesia. I was really tired for a couple of months after surgery. It is brain surgery after all and that’s to be expected. I can roll over in bed at night. Have you lowered your meds at all?

[jocelyng]

Did you have any symptoms on the right side before the surgery?

[Parkygal in reply to jocelyng]

Yes. Tremor mostly

[MBAnderson]

Parkygal, my response to PTT on March 11 is not dissimilar.

I had the right side of my head done, so the left side of my body is good, i.e., completely pain free, tremor free, and dystonia free. The tremor in my right hand has worsened and I had gait initiation issues preop and they have returned, but not as bad. I think gait initiation and freezing are 2 different things. I have become slightly less steady over the past few months. Immediately postop, turning over in bed was easy and now it's difficult again, but those things that have become difficult again are not as bad as they were preop.

Most body movement requires both sides the brain such as balance, movements requiring dexterity, turning over in bed, bowel function, rising from a seated position, vision, speech, etc., So it does not surprise me that where we experienced relief immediately postop, will become difficult again in part because our brain does "work around" tricks and in part because only one site got fixed.

Also, I think we adapt to the new normal very quickly, as in immediately, so it might be hard to remember precisely our condition preop. Even though we might be significantly better off and because we experienced a lot of relief immediately postop, we understandably focus on problem areas that could not be fully resolved by a unilateral procedure.

Some of it dependents upon expectations going in.

I'm happy with the results and very much looking forward to having the other side done.

Marc