Transparency: I am new to this site, but... - Cure Parkinson's

Cure Parkinson's

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Transparency

blogger_7 profile image
18 Replies

I am new to this site, but not exactly new to Parkinson's. I received the diagnosis when I was 71 and am now 73. Looking back, I realize things had begun to manifest at least 3 years prior to diagnosis. I chose to blog as a way to keep the Lewy bodies at bay while I try to Learn/Teach all I can about the variety of symptoms, strategies, therapies and even the silver linings one may find in our journey into the unknowns of Parkinson's I am trying to be as transparent as possible.. It appears to me, that most of the bloggers I find have experienced early onset PD. Am I wrong? Or is it because the early onset disease progresses more slowly, so they can function longer? I found one blogger who made only four posts.. the last thing she typed was that she had fallen and broke her collar bone.

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blogger_7
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18 Replies
pvw2 profile image
pvw2

??"I chose to blog as a way to keep the Lewy bodies at bay"??

blogger_7 profile image
blogger_7 in reply to pvw2

What I meant by the at bay reference was... to exercise my brain, I figure the more I keep my brain active, the less I have to worry about loosing clarity of thought.

Join Facebook group

Parkinson’s thiamine hcl

blogger_7 profile image
blogger_7 in reply to

Thanks! I have joined now and have been studying things out.

chartist profile image
chartist

blogger_7,

Welcome to the forum!

I think you will find a lot of interesting reading here! There are some fairly knowledgeable people on this forum and a ton of practical experience which can be quite useful!

Good luck and good reading!

Art

blogger_7 profile image
blogger_7 in reply to chartist

Thank you.

blogger_7 profile image
blogger_7

Thank you! Iv'e been reading about the B1 supplementation

chartist profile image
chartist in reply to blogger_7

Here is a link to a B-1/HDT/thiamine page that will cover just about everything you need to know about it including a 58 Q&A FAQ page with all questions answered by Dr. Costantini.

healthunlocked.com/parkinso...

Art

jimcaster profile image
jimcaster

Welcome! I have found this to be a very informative and inspiring site. I hope you will, too! I believe "early onset" refers to your age at diagnosis...so it refers to younger people who are diagnosed in their 20's, 30's or 40's. Their disease typically progresses more slowly. Michael J. Fox is a notable example.

blogger_7 profile image
blogger_7 in reply to jimcaster

Thanks, Jim.

blogger_7 profile image
blogger_7

I'm technically challenged. Still trying to figure out where I am supposed to go, to respond to a comment or question. I received a question from Juliegrace in my email linked to this site, but I don't find her. Julie, I was referring to independent writers who have their own blogs.

ParkinsonSpouse profile image
ParkinsonSpouse in reply to blogger_7

I never looked for someone's profile on this site, but happened across a reply Juliegrace made. I clicked on her name & found her profile. You should be able to reply to her there. There's a Message box you can click if you want to message her. Here's the link: healthunlocked.com/user/jul...

blogger_7 profile image
blogger_7 in reply to ParkinsonSpouse

Thank you for your kind help.

ParkinsonSpouse profile image
ParkinsonSpouse in reply to blogger_7

You're welcome!

Juliegrace profile image
Juliegrace in reply to blogger_7

I figured that out so I deleted the question. But as soon as I posted it it shows up in an email to you.

blogger_7 profile image
blogger_7 in reply to Juliegrace

Thank you for explaining. I had no idea a person could delete, Good to know :)

pdcoach profile image
pdcoach

Welcome to the group! Don't know if you have access to a Rock Steady Boxing facility or not -- we have had some good results with our "fighters." Go to:

rocksteadyboxing.org/find-a...

While you are there, look under ABOUT US tab and subscribe to the free magazine "IN OUR CORNER." Also look under the Blog & RSB News and read the relevant articles.

blogger_7 profile image
blogger_7 in reply to pdcoach

Thanks. I did look into it but the expense seemed too great.

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