Exenatide injection info: Anyone here on... - Cure Parkinson's

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Exenatide injection info

Rabilo profile image
12 Replies

Anyone here on Exenatide injection weekly? If so did it really slow down the progression? Pls share your experience. Thanks all

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Rabilo profile image
Rabilo
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12 Replies
shakeylil profile image
shakeylil

Hi Rabilo has Exenatide been licensed for Parkinson's. I thought you could only get it if you were diabetic.

in reply to shakeylil

Still only licensed for diabetes

cureparkinsons.org.uk/trial...

SilentEchoes profile image
SilentEchoes

I'm interested in using liraglutide. It's a long acting GLP-1 agonist.

parkinsonsnewstoday.com/201...

Yes. Jury is still out.

PositivePen profile image
PositivePen

I was on the stage 2 trial and I appeared to improve over the time I was being monitored. As a result I was lucky enough to be prescribed it ever since. It is difficult to judge how I’d have been without it but I’m often told that I don’t look as if I’ve got Parkinson’s. However I certainly feel as if I have when my meds don’t work properly.

Rabilo profile image
Rabilo in reply to PositivePen

Thanks for your feedback. How many months u have been it sofar? And when did u get diagnosed?

Eliza-Jane profile image
Eliza-Jane

I know someone who is on Exenatide for Parkinson's. She was prescribed it some time ago and didn't like it for some reason and went back to alternative medications. Having trouble falling etc and really struggling with life so eventually went back to Exenatide. She has been on it for over 12 months now as is very happy this time around. I don't understand how she has been given it so easily, her Dr recommended it to her initially and second time she requested it. It seems if you have forward thinking Dr you may be able to have it prescribed.

Rabilo profile image
Rabilo in reply to Eliza-Jane

Very interesting

PositivePen profile image
PositivePen in reply to Rabilo

I was diagnosed 2012 and it must be 2 years that I’ve been prescribed Exenatide. I was lucky I know as not every GP will do so.

Binday profile image
Binday in reply to PositivePen

Hi, where do you live? Im thinking that must make a difference as to whether a GP would prescribe it.

PositivePen profile image
PositivePen

I’m in Hertfordshire UK

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