My husband has been diagnosed with early stage of Parkinson but he’s still not convinced although he has all the symptoms ..jerks at night , stiffness and slowness of movement. He’s not able to walk like before ( he could walk non stop).Hes only 62! He refuses to read anything about it although he was a pharmacologist and a very highly educated financier. I wish I can convince him. He doesnt have tremors like most people and I hope he doesnt ever.
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Jumex2017
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A lot of us go through a period of denial and disbelief. You're right, however, the sooner he faces it the better off he'll be. Many of us fine, once we reach the point of acceptance, it's not as bad as we imagined. It's not a death sentence, it's a wake-up call. Keep working on him.
You are right.Since he’s been diagnosed with PD , we have grown closer although he still doesnt want to talk about it.Hes started going to church with me . He knows he’s slow but he’s still not convinced! I will certainly show your reply to him at some stage.
I also think acceptance is the key.Good nutrition, being active, involvement in social activities help alot. Delay taking PD medications as long as symptoms let you.
It's very difficult to accept a diagnosis of any neuro-degenerative disorder, by patients, especially if one understands the pathophysiology of the disease. When I was first diagnosed with PD, I couldn't wrap my head around that "label" at all. I thought, they must be mistaken. I had three Drs., including specialists, all tell me that I had PD. My symptoms were very pronounced. A trial run of Sinemet relieved me of the aggravating resting tremors, and severe stiffness in my leg muscles, in particular, that were impeding my walking. The stiffness was painfull. I had cogwheel rigidity in all four limbs, and my neck muscles, so, yes, I had PD and it had been creeping up on me for a while. With further progression, I've been put on a higher dose of Sinemet, but, as of now, I have my life back, somewhat. When the medicine starts to wear off, and symptoms start to come back, I am reminded of how rough it can get. So I'm thankful for Sinemet and I am reminded every so often that I do accept having PD. I didn't choose it, it chose me. When one is given lemons, one makes lemonade, comes to mind, as an analogy.
Like many of us I had symptoms for about 2 years before I was diagnosed. My family doc swore up and down I had essential tremor and not PD. That last year before diagnosis was really rough on me, because I knew that something was really wrong, but didn't know what. When I finally got diagnosed it was a big relief. I left the neuro's office smiling that day. I went right to work researching PD and signed up for Rock Steady Boxing. In addition to fitness training, RSB turned out to be a supportive community, which helped a lot. Another thing that has helped me tremendously has been this forum. So please let him know about H-U and it's great mobile app. Best of luck to you and your husband on the PD journey.
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