New neurologist....

[12stargate]

Would anyone from The Salt lake City area recommend a terrific neurologist?

Thank you <3

[JohnPepper]

Hi Stargate. It is interesting to see two questions this morning about trying to find a neurologist in their area. I have to say that I hear from so many people that their neurlogist does not listen to them and they don't tell patients anything about how to deal with Pd, in addition to taking medication.

Because I have been able to recover from most of the more serious effects of many of my symptoms and have no longer needed any Pd medication for the past 14 years, I have met a great deal of scepticism from neurologists who have not ever met me. This is, in my opinion a knee-jerk reaction, which can be expected. There are many people who have claimed that what they are 'selling' will cure Pd and/or make it better. I do not sell anything, other than my very amateurly written book. People do not have to buy my book to find out how I managed to get where I am, they can go to my website and pick all the tips up for free.

I am currently going all over the English-speaking world, at my own expense, which I hope will be donated back to me by 'excited patients', who have witnessed how they were abe to walk properly, within a couple of minutes of being shown how. Only two doctors have ever spoken to me about what I do. Isnt that telling us that they are not even interested? I would not spend a fortune on air tickets if I thought that people would not be excited about what they hear from me and what they witness. If what I am doing and saying does not work, I would be losing a lot of money.

Doctors are trained at great expense to dispense medication based on experience gained over thousands of years. Because exercise does not fall within their training and because exercise has not, until ecently, been known to have any effect on Pd. But that does not mean that it is NOT TRUE!

There is something that nobody seems to understand. I, as a patient, found that if I concentrated hard on my walking, I was able to walk properly. When I lose that concentration I immediately shuffle. I will state quite categorically that MY CONSCIOUSLY CONTROLLED MOVEMENTS ARE NOT AFFECTED BY PD, WHEREAS MY SUBCONSCIOUSLY CONTROLLED MOVEMENTS ARE!

THAT IS WHY I AM ABLE TO SHOW PEOPLE EVERYWHERE IN THE WORLD TO TAKE CONSCIOUS CONTROL OF THEIR MOVEMENTS!

Neurologists, or the teachers of neurlogy, must take note of these changes in approach to dealing with Pd.

Patients need information and suport in their struggle with Pd!

I am 81 years old and cannot expect to take another 14 years trying to make people with Parkinson's aware that THERE IS SOMETHING THEY CAN DO TO MAKE THEIR LIVES, AND THOSE AROUND THEM, MUCH MORE ENJOYABLE.

John

[12stargate in reply to JohnPepper]

JohnPepper You are a marvel John Pepper!!

Tell me something, what is your recommendation for walking for a person, me, who is constantly dizzy??

[JohnPepper in reply to 12stargate]

Hi Stargate. Do you really mean 'Dizzy' and not 'Off balance'. The only suggestion I can give you about dizziness is to have someone hold your arm while you walk. I do that when I demonstrate the walkng to patients who shuffle. They tend to fall a lot because they are not in control of their movements. When you start to do the walking, you will find that your legs get a lot stronger and you get less tendencies to fall. It is a chicken and egg situation. When you don't walk you lose muscle tone and start to fall quite often, but when you regularly walk you get stronger and fall less. There is a point at which you will cease to need someone to hold your arm and then you are off on a winning streak. By the way, it also helps the person who is heolding your arm!

Good luck!

John

[laglag]

John & Eva,

Will you be going to the World PD Conference in Portland, OR in September? I haven't decided yet if I'm going, but if I do, I would like to meet you and anyone else from this website that may be going. Perhaps that may be a good place to find a good neurologist?

If I go, Eva, I will check around for you.

Keep fighting!

Debbie

[12stargate in reply to laglag]

laglag I am not going. Thank you for checking around for me!!