Has anyone heard of the Helen Foundation.... - Cure Parkinson's
Has anyone heard of the Helen Foundation. I called them and it sounds promising but expensive. They say they can reverse pd.
Never heard of them. Where are they? I'd ask for their credentials. I'd be very leery of any one or place that said they can reverse a disease and it is not widely known. Some of these places sell vitamins or supplements that make dramatic claims but when you ask for studies proving it either they can't or it involves 3 or 4 subjects.
They have been around for years and believe the cause is inflamation. The treatment is called microdose therapy. I have spoken to them extensively and they seem sincere. They have tried to put it in front of mjfoxfoundation but no luck. You can google the Helen Foundation for more information. I thought I read a while back that one of the members was going to try it. God Bless
I'll have to google them but I have a lot pf reservations about anyone who claims they can reverse PD.
It is your money and your body but NO ONE can reverse PD. By the way Con men sound very sincere, they would not make any money if they didn't.
I've read about it and discussed it with my doctor. He said it sounded like it was worth trying and he would work along with the doctors from the Helen Foundation. I'm thinking about it, but if it's the answer to PD then why don't others know about it? It is very expensive too.
If you decide to try it then please let me know how it worked out, I'll do the same. Blessings.
Reverse to when or what period of your parkinsons?
Get a written guarantee from them first a cure or money back.
I think you will find they will decline.
heard of them too. Talk to them but sounds expensive
Hi. I recently tried the Microdose Therapy from the Helens Foundation which claims to reduce chronic pain for Arthritis, Fibromyalgia, back pain by 80% with the use of the drug Hydrocortisone in 2 phases.
They claim to reduce pain for Arthritis, MS, CFS, Fibromyalgia, back pain, migraines and even Parkinson’s by using Hydrocortisone (Cortisol) tablets. You name the illness…they claim to “reduce it or eliminate it.”
Against the wishes from my RA & PC docs, who thought it was one of many ways to take advantage of chronic pain sufferers, I bit the hook of the promises to “arrest Fibromyalgia in 21 days” with a program where “patients averaged 77% relief.” I have Arthritis, Fibro, CFS & herniated discs. Yes, I am a fool but desperate people in much pain tend to do desperate & foolish things. Of course the people at the Foundation were very nice over the phone. They were also very happy to “get my check” of $7495.00 rather than my medical information.
They wanted their money and a signed contract up front before determining if I was even qualified by a physician or able to safely take the Hydro-cortisone. Even if you are Medically Disqualified from entering the program by a local doctor they send you to you will only get back a small portion of the $7495 you paid to enroll in the program. You can only use the doctor they send you to. I was only able to recover $1950 out of the $7495 I paid up front. I was only in the program for 4 weeks out of the 5 month long program. They don't care what kind of reactions you might have or what you have. All they care about is the money.
I thought they would have a pain management clinic nearby where I could learn more about pain management. Instead I was sent to a neighborhood GP doctor who had patients coming in and out of his office. I walked in. He wrote a prescription and I was out the door in a short time. A patient manager would call you wanting your pain diary scores.
There were no "physician supervised treatments." All they cared about were your diary numbers which consisted 4 pages which you faxed in or emailed in. They forwarded the scores to Dr. Stenberg and he would put them in his graphing computer program which would generate color graphs like the graphs you played with in grammar school only this one costs you $995. He calls it a "digital tracking system" but it is nothing but a colored graph. What is another kicker is that the food allergy testing they charged me $900 is from Spectrum labs which tests dogs, cats, horses for pet owners & vets.
During the 4 weeks of a $3,400.00 “Shower” loading dose of 100 mgs of Hydrocortisone (Cortisol), I experienced adverse reactions such as swelling of the face, jaw, neck and armpits, a sore throat & minor chest pain. The head face & jaw pain was made it unbearable to be around anyone or do anything. What really concerned me the most was an overwhelming, dark crushing depression and an extreme level of fatigue to the point that I could barely get out of bed. I barely had the strength do complete basis daily activities and take care of my mom who has severe RA. These reactions were far worse than I experienced with Prednisone. I was told Hydrocortisone was a more “natural” drug similar to the body’s own Cortisol but my body could not tolerate it and the side effects were unbearable even when I tapered the dosage down. So I discontinued the drug. I should have listened to my doctors who discouraged me from entering the program. The docs told me that Hydrocortisone is really NO different from taking Prednisone.
Outside of his pre-prepared emails and a rather insulting final letter I had no communications with Dr. Stenberg. How he came up with 18%, 21%, 7% & 32% improvement of my pain is beyond me outside of stopping the drug and allowing my body to recover on its own. I have the total numbers which show a dramatic increase in pain... In his final letter he wrote, "Which are we to believe: Ms...diary numbers or her words?" I do believe the numbers come from the words.
In essence, it was a very expensive lesson for me to which the program cost me out of pocket $5545.00 out of $7495.00. They weren't concern with my reactions. In fact Dr. Stenberg from the Foundation wanted me to continue taking the medication...probably to get the rest of the money of $1950.00 There is a predator preying on people in pain even on the msg boards! So be warned! You don’t need to spend $7495!
I did received feedback from a fellow sufferer that Dr. Michael Jon Kell medical license was revoked and that he was convicted in Georgia of one count of felony Conspiracy to Defraud the State, one count of felony Medicaid Fraud, one count of felony False Writings, and three counts of felony Tax Evasion. Dr. Kell endorses Dr. Stenberg’s program and is listed on the Helens Foundation website! So everyone beware! Birds of a Feather Flock Together! I hope this helps prevent others from being preyed upon.
Dr. Stenberg is holding a lot of seminars targeting suffers of Parkinson, Multiple Sclerosis in addition to Arthritis & Fibro. Someone wrote to me about how Dr. Stenberg is taking advantage of the temporary high from the steroid medication which eventually wears off several months later and that is how long his program is. I understand this feeling of well being from taking prednisone years ago. I did feel good and I had less joint pain and with a cup of coffee I could do almost anything but the good effects of prednisone were soon replaced with adverse effects that forced me to stop taking the med.
Whether you have Parkinsons, MS, Arthritis, Fibro…beware! Take care.
Right now I am working with a chiropractor and holistic nutritionist. I am doing well. He has a different approach and also believes in the power of prayer. He thinks in a lot of cases it is lack of protean over the years which applied to me as a vegetarian. I will keep you informed as to my progress. In case you didn't get the first part of my reply I checked on microdose therapy and didn't do it because of the cost. God Bless. There is a cure out there somewhere and it might not be drugs.
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