Beautiful poem..one we can all identify with but thankfully I have my husband and children alongside..I wish you all the best and thankyou for sharing those words which although very poignant, was lovely to read. Keep on writing you have a gift x
I hope your family did not abandon you because of your Parkinsons.
If they abandoned you because of Parkinsons they were not worthy of being called family. I have found after 15 years of this disease you mind and trying not to think too much about it is the best treatment. You can try and not tink so much about it, do as much each day as possible. Good Luck
I think there's a lot of grief work people do around PD and also getting older. You got the 'getting older,' PD and a wife who left. There's no way we can pick ourselves up by our bootstraps, but we can connect with others, make new friends, and maybe even find a new partner, if that's what you want. Maybe a therapist can help.
Who knows?
"a real friend walks in when the rest of the world walks out" is a saying I like. Those that stand with us, who watch over us, or keep in touch are 'real' friends. Does your son keep in touch? Ours lives 1000 miles away. Still, he could go to 'children of...' support group. Someday I'll suggest that to him.
Have you written other poetry? Writing for emotional healing is a great way to move on. And in the case of the poem you share, it's very meaningful to others. Maybe subscribe to Writer's Almanac, a free, daily message on writing and writers, with a poem read aloud every day.
Your poem is beautiful. I am sad to hear that you face this all alone. I can't imagine what that must be like. Have you sent a copy of your poem to your son? Perhaps he needs to read your words to know what your life has become. Keep writing and sharing your thoughts ......thank you.
You are a very loving wife and your husband is very lucky. My wife says the PD has changed me and that is why she left me, but thinking about it I have not changed.
I believe she just did not want to deal with this.
First poem I have written whilst having a Dystonia episode.
I am so sorry your wife could not handle PD. And I agree, PD doesn't change our essential selves. Also want to say that often it's women with PD who lose their partners or spouse but your story shows the opposite is true. In the support group we got to, we see several wives who are devoted (not the right word), who can stand by their loved one, despite the challenges. This is not how we wanted to live our retirement but gratitude and humor (and commitment and character) is what gets us through.
I hope you find more people who will stand by you.
i love your poem it is exactly as i would describe dystonia if i were as talented .but since im not i just had dbs two weeks ago.best thing i ever did to kick parkinson in the teeth . i feel my husband was getting very tired of me dealing with this old disease.so we will see now
well said. I'm lucky I shed my husband before I got symptoms. I'm alone but I cherish my freedom. (knock wood!) Little by little PD wants it, but I'll go down with a fight. (raise a fist
Can relate to your poem. At the moment I have been lucky with a supportive husband. I find friends have changed towards me, as I can,t do things with them we used to do. Family try to ignore the change in me, also they don,t visit much.
That is very nice. For me writing the poem let some steam off got rid of maybe a little anger I don't know because I have accepted PD and come to terms with it, some people cannot do both.
It let me express not just how I was feeling but how so many of us/ you are feeling in a. Way that could not be said verbally. One of my friends said it was Beautiful, Sad, Honest and True all in the one poem I feel that I had to share it, it is important that others who are not PD understand because I don't think they do x
I so admire your ability to put it into words...my husband has PD, but his stages are very mild, so far...when I read your words, I realize, with gratitude how lucky he is....right now. I was very shocked when he was first diagnosed, ( three years ago...he is now 76) and cried my heart out...not in his presence, of course, but right then I made up my mind that the problem was not his alone, but ours, as a couple....we deal with it ,day by day, I helped him find a doctor, helped him to learn to schedule his meds...and etc. I will be by his side, as one, for as long as I am able....if our luck is good...his case may not get to an acute degree before we are both called by our Maker. Good Lord willing. Amen.
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